Hetlena Johnson

ADVISORY BOARD MEMBER

Hetlena Johnson has an educational specialist degree is in Computing Technology in Education with an emphasis in instructional design. She has worked in the education industry for 17 years. Her extensive experience in training supports the maintenance of efficient technology educational services. Hetlena is a PatientsLikeMe.com patient advisor. She has a certification as a National School Reform Faculty Critical Friends Group Coach. As a NSRF-certified CFG Coach, she provides strong leadership in facilitating lupus support groups. As the Statewide Volunteer Contact (Former Chief Volunteer Officer for LFA South Carolina Community Volunteer Partner) of the Lupus Foundation of America, Inc., Hetlena leads the coordination of training and supporting those diagnosed with lupus in the state of South Carolina. As an African American woman living and thriving with lupus for the past 25 years, her ability to coordinate strategies, design solutions, and consult as a lupus empowerment guide provide needed leadership for lupus peer group activities.

She holds an Educational Specialist Degree Computing in Technology in Education. Hetlena specializes in delivering dynamic and energetic motivational experiences. Her technology cheerleader appeal has graced such stages TEDxDENVER and numerous state-held education conferences.She has had several businesses to include her own property management company based in Columbia, SC. In her spare time enjoys, traveling, reading, and writing for her personal blog,www.thelupusliar.com and books, www.jhjohnsonbooks.com.

Hetlena was diagnosed with Systemic Lupus Erythematosus, known unassumingly as Lupus, in early 1993. The beginning of her walk with Lupus was painful and confusing. Hetlena continues to share her tidbits of her remarkable journey with Lupus on her blog at www.thelupusliar.com. She is the author of several books to include her soon to be released book entitled “Keep Up With Lupus: A Digital Guide.” J. H.’s continued journey inspires those who know her to keep close to the heart, life’s ups and downs, happiness and trials. She continues to see a physician regularly. The gift of a healthy life is not often received. Yet, the art of loving the life that you have and the health that you can achieve, makes life all the more special. J. H., is indeed, a genuine example of a Lupus Warrior.

Lupus, also known as Systemic Lupus Erythematosus (SLE) is a disease that can affect many different body systems, including the joints, skin, kidneys, blood cells, heart, and lungs. Lupus is more common in women than in men. Research continues to be done on finding a cure for this life-threatening illness. This diary records thoughts and feelings for being diagnosed to understanding to accepting the reality of living life with Lupus.Lupus, also known as Systemic Lupus Erythematosus (SLE) is a disease that can affect many different body systems, including the joints, skin, kidneys, blood cells, heart, and lungs. Lupus is more common in women than in men. Research continues to be done on finding a cure for this life-threatening illness. This diary records thoughts and feelings for being diagnosed to understanding to accepting the reality of living life with Lupus.

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