Casey Quinlan

ADVISORY BOARD MEMBER

Casey Quinlan covered her share of medical stories as a TV news field producer, and used healthcare as part of her observational comedy set as a standup comic. So when she got a breast cancer diagnosis five days before Christmas in 2007, she used her research, communication, and comedy skills to navigate treatment, and wrote “Cancer for Christmas: Making the Most of a Daunting Gift” about managing medical care, and the importance of health literate self-advocacy. In addition to her ongoing work as a writer, she’s a Clinical Research Advocate for Science37, an active member of the Society for Participatory Medicine, the health literacy expert for the Patient Empowerment Network, and part of the Lown Institute’s Right Care Alliance. She’s also a popular speaker and thought leader on healthcare system transformation from the ground up.

Casey served on theHealthIT.gov Consumer Empowerment Workgroup of the Health IT Policy Committee (HITPC), and was named an ePatient Scholar to Stanford’s MedicineX in 2013. She participated in the development of the Patient and Family Engagement Roadmap, and was recognized as a patient engagement expert by the WHO. Shepresentedatthe firstHIMSS Patient Engagement Summit, at the HIMSS Privacy & Security Forum, andatDellWorld, as a patient voice on topics from trust in the clinical relationship to data security issues in medical record interoperability. She has also appeared at the national health policy Conference, the Genetic Alliance’s Building Trustworthiness in PCORnet meeting, Health Datapalooza, HX Refactored, and the Healthcare CFO/CXO Summit.

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