Tag: top patient leader


Acromegaly Awareness: You’re Very Complicated

To celebrate and recognize Acromegaly Awareness Day, we asked Patient Leader Kara LaFrance to share her acromegaly story. We invite you to share your own acromegaly story on social media as well. The more that we can share stories and information about acromegaly, the more we can raise awareness and help each other! You’re Very…

3 Tips for Advocacy of Instagram

I created @anxietysupport on November 12, 2012.  I was sitting on my mom’s couch in dire need of a supportive community of people who shared similar struggles. I had been in recovery for a little over a year from panic disorder with agoraphobia and was struggling immensely with anxiety and depression, so much so that…

Top 3 Tips for Patients Facing a New Diagnosis

Facing a new diagnosis may bring fear, anxiety and a search on Dr. Google (only to reveal the worst possible scenarios of course). Fortunately, there are hundreds of patient communities and leaders online ready to embrace and support you as you begin your patient journey. WEGO Health Awards Best Kept Secret Patient Leader, Amber Wallace,…

For Jack: Remembering A Remarkable Man

Jack Whelan stopped by WEGO Health’s Boston headquarters this summer, on August 15th to be exact. We’d been meaning to spend some real one-on-one time for years; it seemed we were always in a group, changing the world with fellow advocates. Uncharacteristically, Jack was persistent – he wanted to set a date, he made sure…

How to Build Community & Engagement​ ​From Top Patient Leaders

Who better to help us lead a discussion on building community and engagement than the finalists for Best in Show: Blog and Best in Show: Community? During our WEGO Health Awards week, these finalists talked about their “go to” strategies for engaging with networks, what apps or tools can be utilized and the challenges faced when…

#HAAwards Celebration Schedule Of Events

Are you getting excited for the #HAAwards celebration?! Because we sure are! Our Patient Leader network is straight up awesome. Whether you’re cracking someone up, offering inspiration to keep fighting or offering support - you all have made an impact on another’s life. You all are creating change. And you all deserve to be celebrated!…
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