Tag: rare disease

9 Patient Leaders You Should Follow This Rare Disease Day

A disease is considered rare when it affects fewer than 200,000 people. Yet, 1 in 20 individuals will experience a rare disease in their lifetime. Many who have a rare disease often go undiagnosed or misdiagnosed for years, sometimes even decades. And when individuals do finally receive a proper diagnosis, it can be difficult to…

#FeatureFriday: Ilana Jacqueline, Rare Disease Patient Leader

February 28 marks Rare Disease Day! The day was created to bring widespread recognition to rare diseases and the patients they impact. On February 28th, patients and families around the globe will share their stories in hopes of promoting awareness of the challenges and needs of those within the Rare Disease Community. WEGO Health is…
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