Tag: personal health data

Has the “Gimme My Damn Data” movement reached a tipping point?

It’s been nearly ten years since Dave deBronkart was invited by Gunther Eysenbach to keynote the Medicine 2.0 Congress in Toronto. Eysenbach, a medical doctor and health informaticist, was putting the final touches on the conference program and had phoned Dave to ask him what title he wanted to use for his upcoming speech. Dave…

Owning Your Health Identity: New Thinking for New Rights

There’s growing concern that our personal health data, genetic data, and even in some cases our physical cells, are being collected and sold for profit—often without our knowledge or consent. As such, there is a growing belief that we, as individuals, should have the option to claim the right to own our personal health data…

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