Tag: patient voice


4 Reasons to Use Humor in Your Advocacy

As the winner of the 2018 WEGO Health Award for Hilarious Patient Leader, I'm often asked why I chose to approach cancer in such a humorous light. To be quite honest, it really comes down to one, single fact - I only have one, single testicle. Rather than hiding that I’m now 50% more aerodynamic…

5 Tips for Sharing Your Story

  Sharing your story can be scary and intimidating. You may wonder why would anyone ever want to hear what I have gone through? What makes what I have to say important? Will I be laughed at or criticized? Well, I’m here to tell you I was in that phase of hesitancy but decided to…

Endorsements are OPEN for the 2018 WEGO Health Awards

Congratulations to the Patient Leaders nominated for the 2018 WEGO Health Awards!  Each year we are in awe of the nominees for the WEGO Health Awards and this year was no different! We're honored to meet so many new faces and can't wait to celebrate your accomplishments. If you haven't checked out all the fabulous…

Strengthening CME Curriculum with the Patient Voice

CME Outfitters, an accredited CME provider, delivers best-in-class continuing medical education to nurses, doctors, and pharmacists nationwide. Its live and web-based training programs cover new developments related to hundreds of chronic illnesses, rare diseases, and complex health conditions. As an accredited provider that issues CE credits, CME Outfitters aims to deliver continuing education that supports…

Join us to Color The World Orange for CRPS/RSD Awareness on Nov. 7

The third-annual Color The World Orange is Nov. 7 and we need your support!   Color The World Orange  is an annual event held the first Monday of November to spread awareness of Complex Regional Pain Syndrome (CRPS), also known as Reflex Sympathetic Dystrophy (RSD). Around the world on Nov. 7 supporters will be wearing…

So, What Exactly Is Truvio?

Truvio…such an interesting name for a survey platform.  What exactly is it? Well, I’m glad you asked!  I’ll tell you what it is and how we use the responses we receive. So, what is Truvio? The name, Truvio, means “the true voice of the patient” which is exactly what we are getting from you.  We…
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