Tag: patient leader


Tardive Dyskinesia Side Effect, Not Side Show.

Have you ever felt that you were the one patient who just couldn’t be helped? That was my mindset three years into my search for relief from Tardive Dyskinesia. My only saving grace at that point was my husband; he didn’t entertain that thought and wouldn’t let me. We were both up every morning at 5am, googling…

Meet the Man Who Blogs 3 Times a Day!

No, you didn't read that wrong . . . Bob DeMarco, founder of Alzheimer's Reading Room, began writing 3 blogs a day! He's published daily since July of 2009 and now has over 6 million unique visitors benefiting from the +5,000 articles on his site. Bob's blog is the number one source of information in Alzheimer's care,…

Nonprofits: Vehicles of Change!

“A strong and barely controlled emotion”;  this is the definition of the word Passion. This word “Passion” is the reason I made the decision to start my nonprofit organization, “Sickle International Family Coalition”.  Many other nonprofits have been founded on that very word. People create nonprofits because they want to see change. Nonprofits are vital…

#FeatureFriday: Ilana Jacqueline, Rare Disease Patient Leader

February 28 marks Rare Disease Day! The day was created to bring widespread recognition to rare diseases and the patients they impact. On February 28th, patients and families around the globe will share their stories in hopes of promoting awareness of the challenges and needs of those within the Rare Disease Community. WEGO Health is…

February #WEGOHealthChat Recap: From Patient Leader to Paid Consultant

[<a href="//storify.com/wegohealth/wegohealthchat-recap-from-patient-leader-to-paid-c" target="_blank">View the story "#WEGOHealthChat Recap: From Patient Leader to Paid Consultant" on Storify</a>] Click HERE to see the full chat!

WEBINAR RECAP: The Epilepsy Life: Taking Control

Are you a patient or caregiver of someone experiencing seizures? Whitney Petit, a patient leader of the Epilepsy community, is offering tips & insights on taking back control of your life. Learn how to identify possible triggers & what kinds of self-care can prevent future seizures. Whitney will offer her personal tips and the right questions…
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