Tag: patient leader

Webinar: Using Podcasts to Empower Your Voice

Have you ever considered hosting a podcast? Maybe you're wondering what the advantages of podcasting are? Perhaps what equipment you will need? Or maybe you just want to know where to start! Well then this webinar is for you! Join podcast pro Shane Schulz as he offers his best tips and practices for creating your…

Louise Glover: 2016 Best in Show Youtube Winner

My diagnosis of epilepsy was a shock. I didn’t understand how I could have such a condition and insisted that my doctors and neurologists were wrong. I’d only ever saw seizures on television and across social media of tonic-clonic seizures - was that really me? Having just turned 18, a life changing condition was not…

Barby Ingle Shares Her #1 Advice for Award Winning Advocacy Efforts

 Barby is the winner of the 2016 Lifetime Achievement award. She is a patient leader, motivational speaker, author, and President of the International Pain Foundation.  Learn why she does it and her greatest advice for other patients.   I advocate for all of us challenged with a chronic care condition involving chronic pain as well…

Do You Possess This Patient Leader Quality?

I had the chance to meet two representatives from the FDA’s Office of Health and Constituent Affairs during a patient advocacy workshop hosted by the National Center for Health Research, funded by PCORI (Patient-Centered Outcomes Research Institute). The Office of Health and Constituent Affairs involves patients in a myriad of ways through patient engagement milestones, programs,…

#WEGOHealthAwards Award Winner Series Podcast: Lisa Cypers Kamen

Lisa Cypers Kamen is an internationally recognized applied positive psychology coach, author, speaker, documentary filmmaker, and host of the popular radio show Harvesting Happiness, where she has helped millions of people around the world generate more joy and fulfillment in their life The 2016 WEGO Health Awards Best Kept Secret reminds listeners that control of your…

So you want to write a book while chronically ill? Here’s what you need to know.

Nothing is more frustrating than not being able to fulfil your dream because of your chronic illness. If you are one of the 81% of Americans that wants to write a book, you may be struggling to see how you can achieve that with your illness. It certainly makes it more challenging. I know, because…