Tag: patient advocacy

5 Tips for Sharing Your Story

    Sharing your story can be scary and intimidating. You may wonder why would anyone ever want to hear what I have gone through? What makes what I have to say important? Will I be laughed at or criticized? Well, I’m here to tell you I was in that phase of hesitancy but decided…

25 ways to get paid for your advocacy efforts

They say you're either in it for the love or the money. But for patient advocates, the reality is that their time-consuming efforts to transform the landscape of healthcare are careers. Their passion translates to hard work, time, and research. If they want to devote their lives to making a difference, it's a necessity that…

4 ways humor can elevate your message

As the winner of the 2018 WEGO Health Award for Hilarious Patient Leader, I'm often asked why I chose to approach cancer in such a humorous light. To be quite honest, it really comes down to one, single fact - I only have one, single testicle. Rather than hiding that I’m now 50% more aerodynamic…

3 Tips for Advocacy of Instagram

I created @anxietysupport on November 12, 2012.  I was sitting on my mom’s couch in dire need of a supportive community of people who shared similar struggles. I had been in recovery for a little over a year from panic disorder with agoraphobia and was struggling immensely with anxiety and depression, so much so that…

Top 3 Tips for Patients Facing a New Diagnosis

Facing a new diagnosis may bring fear, anxiety and a search on Dr. Google (only to reveal the worst possible scenarios of course). Fortunately, there are hundreds of patient communities and leaders online ready to embrace and support you as you begin your patient journey. WEGO Health Awards Best Kept Secret Patient Leader, Amber Wallace,…

5 Tips for Becoming a Patient Leader

  In the almost two years since I was introduced to WEGO Health, the exposure and assistance I have received is unmeasurable. Becoming a Patient Leader to better interact with our community has been nothing short of remarkable. I’ve been introduced to meeting many survivors here in the U.S. and around the world. To say…