Tag: patient advocacy

Top 7 Facebook Tools To Help Grow Online Communities And Groups

As social media grows, it has become a recognized platform to reach people and communities across the world. Each day more individuals and organizations turn to Facebook to promote awareness, ideas, products and support. With over 2 billion users, Facebook has quickly become a pulpit to reach consumers, market ideas and products. So, it only…

5 Tips for Sharing Your Story

    Sharing your story can be scary and intimidating. You may wonder why would anyone ever want to hear what I have gone through? What makes what I have to say important? Will I be laughed at or criticized? Well, I’m here to tell you I was in that phase of hesitancy but decided…

25 ways to get paid for your advocacy efforts

They say you're either in it for the love or the money. But for patient advocates, the reality is that their time-consuming efforts to transform the landscape of healthcare are careers. Their passion translates to hard work, time, and research. If they want to devote their lives to making a difference, it's a necessity that…

4 ways humor can elevate your message

As the winner of the 2018 WEGO Health Award for Hilarious Patient Leader, I'm often asked why I chose to approach cancer in such a humorous light. To be quite honest, it really comes down to one, single fact - I only have one, single testicle. Rather than hiding that I’m now 50% more aerodynamic…

From Petri Dish to Center Stage: Patient leaders are in the spotlight at HLTH

“It’s time.” It was a spot-on comment. One of many I took away from my conversation with Toby Peach when we met up recently in New York. He was in town from London and I was eager to hear his story. Toby is a writer, actor and social justice activist. He’s also a 31-year-old cancer…

WEGO Health Survey: Patient Leaders are Solidly Behind Drug Price Transparency

With consumers feeling the pinch of healthcare costs more intensely than ever, the debate over cost transparency is only getting more heated. Nobody is feeling that heat more than pharma. Prescription drugs are an ever-increasing share of our out-of-pocket medical costs. And by all accounts, it’s going to get worse. The CMS Office of the…