Tag: patient advocacy

From Petri Dish to Center Stage: Patient leaders are in the spotlight at HLTH

“It’s time.” It was a spot-on comment. One of many I took away from my conversation with Toby Peach when we met up recently in New York. He was in town from London and I was eager to hear his story. Toby is a writer, actor and social justice activist. He’s also a 31-year-old cancer…

WEGO Health Survey: Patient Leaders are Solidly Behind Drug Price Transparency

With consumers feeling the pinch of healthcare costs more intensely than ever, the debate over cost transparency is only getting more heated. Nobody is feeling that heat more than pharma. Prescription drugs are an ever-increasing share of our out-of-pocket medical costs. And by all accounts, it’s going to get worse. The CMS Office of the…

Patient Influencer Perspectives on Social Media

The 100,000+ patients who make up the WEGO Health Patient Leader Network are at the core of everything we do. We believe they are transforming healthcare for the better and it’s gratifying to see more and more life sciences companies recognizing the extraordinary value patients bring to the table. Working with highly engaged advocates and…

Through the Lens of a Patient: Dr. Rasu Shrestha on the Power of Patient Collaboration

At the HIMSS19 conference in February, we had the privilege to chat with Atrium Health Chief Strategy Officer Dr. Rasu Shrestha. Rasu had just wrapped up the inaugural Pharma Forum, which drew more than 225 attendees interested in new ways to foster engagement with the patient, provider and payer community. Beyond buzzwords There was plenty…

3 Tips for Advocacy of Instagram

I created @anxietysupport on November 12, 2012.  I was sitting on my mom’s couch in dire need of a supportive community of people who shared similar struggles. I had been in recovery for a little over a year from panic disorder with agoraphobia and was struggling immensely with anxiety and depression, so much so that…

Top 3 Tips for Patients Facing a New Diagnosis

Facing a new diagnosis may bring fear, anxiety and a search on Dr. Google (only to reveal the worst possible scenarios of course). Fortunately, there are hundreds of patient communities and leaders online ready to embrace and support you as you begin your patient journey. WEGO Health Awards Best Kept Secret Patient Leader, Amber Wallace,…