Tag: Lupus


5 Creative Ways Lupus Patient Leaders Are Raising Awareness

Here are 5 lupus patient leaders channeling their artistic talents into advocacy: Living la vida lupus can be all-consuming — from doctor’s appointments and treatments, to unpredictable flares and complications related to this autoimmune disease. Despite the challenges of navigating a lupus diagnosis, there are patients who are using their creativity and health experiences to…
The State of Patient Influencers

Patient Leader + Thought Leader Conversations, Part 1: The State of Patient Advocacy

MarlaJan Wexler is a leader among Patient Leaders, sharing her very real and often hilariously profane survivor story as Luck Fupus. In her words, Luck Fupus is about “the girl, the nurse, the patient, the part-time superhero… tales of life with lupus, congenital heart disease, fake boobs, and an out-of-order baby maker.” We can’t imagine…

4 Ways to Take Control of Your Healthcare

  Patient Leaders share a common passion for helping others, but there are a plethora of avenues to take your advocacy. Some leaders choose to run support groups, while others create communities on social media. Some Patient Leaders, like the 2018 WEGO Health Awards Healthcare Collaborator winner Amanda Greene, have focused on collaborating with healthcare companies as…

#WEGOHealthChat Recap – Chronic Awareness: Awareness Never Stops

In case you missed our May #WEGOHealthChat, we’ve got this awesome recap for you! In this Twitter chat hosted by Amanda Greene (@LALupusLady), who is a passionate lupus patient leader, we the important of awareness and how to keep it in the forefront of everything you do! Don’t miss our monthly twitter chats on the second…

All Roots Can Lead To Lupus

Do a Google search for ‘lupus support groups’ and you’ll get almost 700,000 results or more. Lupus is getting, shall I say, popular! Although lupus is gaining in stride in terms of awareness, recognition, and public alertness to the cause, there’s still many influences that go unnoticed, places that go untouched, and stories that go…

Lupus Awareness is fun!

          Today is World Lupus Day and WEGO Health is decked out in orange and purple pride (pics to come)! We’ve heard from so many Lupus Health Activists that lupus awareness is fun, and we are joining in today by helping to promote education and visibility of this invisible illness.  Several…
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