Tag: Health Activism IRL

How Patient Advocates can make the most of Awareness Holidays

Raising awareness about a disease or health concern can be an excellent means to foster an appreciation for patients and families, encourage donations to research, or even education about preventative measures. Awareness holidays offer major opportunities to get the word out about a specific disease or overall community. Patient advocates can take advantage of this…

#WEGOHealthAwards Winners Series Podcast: Tory Aquino

There are many reasons Patient Leaders get involved in advocacy, Tory's just happens to be her daughter.  Tory's  daughter, Mariah, was active and full of energy from birth, so it was alarming when her daughter started complaining of joint pains and suddenly became inactive at age four.  The cause of Mariah’s suffering was a mystery…

Do You Possess This Patient Leader Quality?

I had the chance to meet two representatives from the FDA’s Office of Health and Constituent Affairs during a patient advocacy workshop hosted by the National Center for Health Research, funded by PCORI (Patient-Centered Outcomes Research Institute). The Office of Health and Constituent Affairs involves patients in a myriad of ways through patient engagement milestones, programs,…

Feature Friday: Jenni Grover, Chronic Conditions Health Activist

We’ve all been there. Whether it’s a new diagnosis, a problem with insurance or just one of those days when all you want to do is sleep. But having a chronic illness does not mean you can’t have a fabulous life. In fact, Jenni Grover is on a mission to help all women struggling with…

#HAchat: Which came first? The Online or Offline Health Activist

[caption id="attachment_4886" align="alignright" width="240" caption="Image credit: myguerrilla on Flickr"][/caption] Continuing our discussion of IRL Health Activism, this week’s #HAchat focused on the intersection between the online and offline Health Activist community.   Logistically, offline advocacy was around long before online advocacy. After all, the internet is still relatively young, and online patient communities as we know…

#HAchat Recap: On Offline Awareness Events

For Health Activists it doesn’t get more IRL than awareness events.  We know that many members of the WEGO Health community must have attended at least one awareness event in their life, whether it be a talk at a local organization or book store, a walk, a conference, or a fundraiser.  But what goes into…