Tag: Health Activism IRL
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#WEGOHealthAwards Winners Series Podcast: Tory Aquino
There are many reasons Patient Leaders get involved in advocacy, Tory's just happens to be her daughter. Tory's daughter, Mariah, was active and full of energy from birth, so it was alarming when her daughter started complaining of joint pains and suddenly became inactive at age four. The cause of Mariah’s suffering was a mystery…
Do You Possess This Patient Leader Quality?
I had the chance to meet two representatives from the FDA’s Office of Health and Constituent Affairs during a patient advocacy workshop hosted by the National Center for Health Research, funded by PCORI (Patient-Centered Outcomes Research Institute). The Office of Health and Constituent Affairs involves patients in a myriad of ways through patient engagement milestones, programs,…