Tag: Health activism

Supporters Unite to Color The World Orange for CRPS/RSD Awareness on Nov. 6

Get your orange ready! The fourth-annual Color The World Orange on November 6 is almost here. Color The World Orange is an annual event held the first Monday of November to spread awareness of Complex Regional Pain Syndrome (CRPS), also known as Reflex Sympathetic Dystrophy (RSD). On November 6th, supporters around the world will wear orange…

How Patient Advocates can make the most of Awareness Holidays

Raising awareness about a disease or health concern can be an excellent means to foster an appreciation for patients and families, encourage donations to research, or even education about preventative measures. Awareness holidays offer major opportunities to get the word out about a specific disease or overall community. Patient advocates can take advantage of this…

Revealing the Power of Digital Health: An ePharma 2017 Recap

The standard of healthcare in this day and age has been raised. Patients are no longer waiting for change to occur. We have become drivers of our own care. Meanwhile, there has been immense growth in the wide world of healthcare social media. Physicians are taking to the interwebs to share insights amongst one another.…

Feature Friday: Morgan Gleason, Rare Disease Patient Leader

Do you remember being eleven years old? Most of us can only recollect things related to braces, cooties and the playground. Morgan Gleason however, has a different story. Her family knew Morgan to be a normal kid- she spent time with friends, was active, and participated in cheerleading. Then one day Morgan began to notice…

Webinar Replay: Health Blogging 101

Who's starting a blog but doesn't know where to start? We welcome new patient leaders to the online health community, but we know it can be overwhelming to start advocating. What platform to choose? Where to buy a domain? How to create the perfect blog name? It's a lot! Join the WEGO Health Network team…

WEBINAR RECAP: The Epilepsy Life: Taking Control

Are you a patient or caregiver of someone experiencing seizures? Whitney Petit, a patient leader of the Epilepsy community, is offering tips & insights on taking back control of your life. Learn how to identify possible triggers & what kinds of self-care can prevent future seizures. Whitney will offer her personal tips and the right questions…