Tag: chronic illness


5 Top Patient Leader Blogs to Watch

Although blogging started in the late ‘90s, it really came into its own as a major form of media in the 2000s. In 2004, Merriam-Webster even declared blog as their word of the year. As blogging grew more and more popular, it quickly became a favorite for patients. Blogging was a way for them to…

March #WEGOHealthChat Recap: Combating the Stigma of Chronic Illness

Living with a chronic illness not only means dealing with a lifetime of complications but it also means endlessly fighting off the stigma associated with chronic illness. How do you combat the stigma of chronic illness? Is it through education and awareness? Is it your role as a Patient Leader to combat this stigma? What…

#PatientLeader Webinar: Chronically Capable: Managing Chronic Illness Chaos At Work

Owning your own business, executing consulting work, or working as an employee with a chronic illness can get chaotic. But it's important that you know that you’re more than capable of keeping your career on track. In this #PatientLeader webinar, we’ll speak with patient advocate and author of the book Surviving and Thriving with an Invisible…

Your advice to new Patient Leaders

WEGO Health is committed to amplifying the Patient Leader voice and it all starts with the first time a patient or caregiver shares their initial blog post, tweet or picture on Instagram. As Patient Leaders ourselves, Julie (WEGO Health Patient Leader Network Director), and I know that starting out on your advocacy journey can be…

Using My Patient Journey with Crohn’s Disease to Influence Healthcare

My Patient Journey As a woman who has battled Crohn’s disease for nearly 12 years and as a new mom, navigating my “new normal” is daunting. It’s a realm of new experiences, joys, and struggles. The worry of when the next flare-up will strike and how I’ll deal with it when I end up in…

#WEGOHealthChat Recap – Chronic Awareness: Awareness Never Stops

In case you missed our May #WEGOHealthChat, we’ve got this awesome recap for you! In this Twitter chat hosted by Amanda Greene (@LALupusLady), who is a passionate lupus patient leader, we the important of awareness and how to keep it in the forefront of everything you do! Don’t miss our monthly twitter chats on the second…
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