Tag: chronic illness


Your advice to new Patient Leaders

WEGO Health is committed to amplifying the Patient Leader voice and it all starts with the first time a patient or caregiver shares their initial blog post, tweet or picture on Instagram. As Patient Leaders ourselves, Julie (WEGO Health Patient Leader Network Director), and I know that starting out on your advocacy journey can be…

Using My Patient Journey with Crohn’s Disease to Influence Healthcare

My Patient Journey As a woman who has battled Crohn’s disease for nearly 12 years and as a new mom, navigating my “new normal” is daunting. It’s a realm of new experiences, joys, and struggles. The worry of when the next flare-up will strike and how I’ll deal with it when I end up in…

#WEGOHealthChat Recap – Chronic Awareness: Awareness Never Stops

In case you missed our May #WEGOHealthChat, we’ve got this awesome recap for you! In this Twitter chat hosted by Amanda Greene (@LALupusLady), who is a passionate lupus patient leader, we the important of awareness and how to keep it in the forefront of everything you do! Don’t miss our monthly twitter chats on the second…

So you want to write a book while chronically ill? Here’s what you need to know.

Nothing is more frustrating than not being able to fulfil your dream because of your chronic illness. If you are one of the 81% of Americans that wants to write a book, you may be struggling to see how you can achieve that with your illness. It certainly makes it more challenging. I know, because…

Weekly Health Activist Roundup

[caption id="attachment_9053" align="aligncenter" width="225"] We moved to a new location, right across from the Boston Commons![/caption]   Comforting When Ill  What do you find comforting when you are not feeling well? What lifts your spirits? Here is a great Pinterest board "Comforting When Ill" - what catches your eye? How to Cope Without Your Medication…

Guest Post: Living Through Laughter

Today's post is by Health Activist Chris Dean - who has shared a bit about inspiration despite chronic illness. Thanks for sharing with us, Chris! Be sure to follow Chris if you don't yet on her blog Life Your Way and on her Facebook.   Living Through Laughter by Chris Dean Last November 4th, I sat…

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