Tag: Awarness


Patient Leader #FollowFriday – May 4th, 2018

Last weekend was the HealtheVoices conference and I had the pleasure of meeting over 100 Patient Leaders in 40 condition areas. Was it awesome? Yes. Was it overwhelming? Yes but so worth it. This #FollowFriday is a special one, not only because we are featuring 4 Patient Leaders, but they're all people I met at…

Spinal Muscular Atrophy Patient Leader #FollowFriday – April 20th, 2018

On this #FollowFriday, we're featuring three really powerful Patient Leaders. Below you'll meet Alex, Ariella and Heather who are living with Spinal Muscular Atrophy. SMA is a genetic disease affecting the part of the nervous system that controls voluntary muscle movement. We encourage you to check out these Patient Leaders, learn more about SMA and help…
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