Tag: Awareness


#WEGOHealthChat Recap – Chronic Awareness: Awareness Never Stops

In case you missed our May #WEGOHealthChat, we’ve got this awesome recap for you! In this Twitter chat hosted by Amanda Greene (@LALupusLady), who is a passionate lupus patient leader, we the important of awareness and how to keep it in the forefront of everything you do! Don’t miss our monthly twitter chats on the second…

#WEGOHealthAwards Winners Series Podcast: Tory Aquino

There are many reasons Patient Leaders get involved in advocacy, Tory's just happens to be her daughter.  Tory's  daughter, Mariah, was active and full of energy from birth, so it was alarming when her daughter started complaining of joint pains and suddenly became inactive at age four.  The cause of Mariah’s suffering was a mystery…

Webinar Replay: An Anthropologic Look Into Online Patient Communities

As previously presented at SXSW. From the beginning, the Internet has allowed patients and caregivers to create online communities that provide something offline communities cannot. In the case of rare genetic disorders, it is a chance to connect with others who know what you are facing; in the case of debilitating disease, a chance to…

Feature Friday: Morgan Gleason, Rare Disease Patient Leader

Do you remember being eleven years old? Most of us can only recollect things related to braces, cooties and the playground. Morgan Gleason however, has a different story. Her family knew Morgan to be a normal kid- she spent time with friends, was active, and participated in cheerleading. Then one day Morgan began to notice…

Webinar: How To Be An Empowered Advocate

You were just told that you or a loved one has a health condition or a disability - now what do you do? Once you get over the denial phase of the diagnosis, only then can you start advocating. Only then can you begin to look for the best healthcare providers, to provide the best…

The 411 on Planning an Online Event for your Cause

The only thing you need when planning a campaign to raise awareness for your cause is the desire to make change happen… Of course, there are many other components in planning any type of campaign, network or mission that aims to influence the public and media but, in order to do so, you must be…
X

Send this to friend