Tag: advocate


Nonprofits: Vehicles of Change!

“A strong and barely controlled emotion”;  this is the definition of the word Passion. This word “Passion” is the reason I made the decision to start my nonprofit organization, “Sickle International Family Coalition”.  Many other nonprofits have been founded on that very word. People create nonprofits because they want to see change. Nonprofits are vital…

Starting a Blog 101

One of the most important tools for a patient leader is having their own website or blog. For many patient leaders, their website/blog are one in the same. This is the place where they share their story, the place where they connect with other patients and caregivers, and keep the world updated with the advocacy…

Feature Friday: Ross McCreery, CRPS/RSD Health Activist

“As a health activist community we need to continue our fight! People are starting to listen and our voice is starting to bring about change.” A powerful, but exciting and true statement, especially from CRPS/RSD health advocate Ross McCreery, who works endlessly to make a difference. When Ross failed to find the help he needed…
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