How Patient-Centered Care and Patient Leadership Go Hand-in-HandIn the ever-evolving landscape of healthcare, the concepts of patient-centered care and patient leadership have become increasingly vital in shaping the quality and effectiveness of how medical care is given... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments1 comments
The Art of Getting Paid for Patient Advocacy WorkIn the realm of patient advocacy, passion and dedication are often the driving forces behind the invaluable support provided to individuals navigating the complex world of healthcare. Often, we advocates... By Aaron Blocker2 min readBookmark for laterReactions 0 reactions Comments2 comments
Art As AdvocacyPatient advocacy doesn’t have to be a one-size-fits-all approach. Art is an underrated form of patient advocacy that can be beneficial, not only for the artist, but also for the... By Tatiana Corbitt2 min readBookmark for laterReactions 0 reactions Comments0 comments
How I Got a Governor's Proclamation for Disease AwarenessOne of the things I wish that was available when I started my advocacy is that there would exist a handbook that gives you insight into what you can do... By Vickie Wilkerson3 min readBookmark for laterReactions 0 reactions Comments0 comments
Getting to Know Our Social Health Network MembersThe new Social Health Network (SHN) provides space to connect with other Patient Leaders. In August, we posted several prompts to the Social Health Network Facebook page to act as... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
10 Insights for Those Living With Chronic Conditions and Their CaregiversAs a passionate advocate for those living with multiple chronic conditions, I've walked alongside numerous individuals facing ongoing health challenges. I've witnessed firsthand the difficult nuances of the healthcare journey... By Elle Cole3 min readBookmark for laterReactions 0 reactions Comments5 comments
Fibromyalgia and Mental Health: The High Cost Survivors of Trauma PayRecently, I compiled a data analysis report. The data was collected through the Fibromyalgia Care Society of America’s (FCSA) application. It was important that I understood the needs of the 351 people waiting for our... By Milly Velez2 min readBookmark for laterReactions 0 reactions Comments2 comments
Building Relationships With LegislatorsAs an advocate focused mostly on healthcare policy and legislative advocacy, I am often asked how I connect with, and establish relationships with my legislators. Here are some of my... By Kristal Kent6 min readBookmark for laterReactions 0 reactions Comments6 comments
Expanding Your Value as a Patient Key Opinion LeaderAs a Patient Leader, you've answered the call to help other patients and caregivers in your community. Day in and day out, you're entrenched in your community's conversation. By sharing... By julie-croner4 min readBookmark for laterReactions 0 reactions Comments1 comments
My Journey in Becoming a Health AdvocateMy journey as a health care advocate started years ago when I became a CNA (Certified Nurses Assistant) I have always enjoyed helping others. As a teenager, I knew when... By Jackie English4 min readBookmark for laterReactions 0 reactions Comments9 comments
In America: What’s That?The In America survey is now closed. To learn more about the challenges of living with chronic, rare, and terminal health conditions, we are conducting our In America survey. By... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Replay: Connexion Advocacy Crafting Session With Carolyn RotellaHealthcare advocacy as a Health Leader is deeply meaningful work--it can also quickly lead to burnout. Crafting effective health advocacy strategies requires not only your expert knowledge as a patient... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
How To Use Social Media as a Patient LeaderPatient advocacy can take many forms. Some examples are writing your senators in favor of research funding, leading a support group, or writing a blog. But with social media use... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Replay: Connexion Patient Leader Certification LaunchThe Health Union Patient Leader Certification Program offers a comprehensive toolkit for Patient Leaders seeking to elevate their impact in the healthcare space. During the Connexion Conference in 2023, Julie... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Webinar Replay: Navigating the Holidays While Living With a Terminal or Chronic ConditionWith the arrival of cold weather, the onset of darkness, and the start of the busy holiday season, a sense of vulnerability can be felt by many. This feeling may... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Importance of Patient PerspectivesLiving with a chronic illness comes along with a few facts of life - the first is that our experience of our illness is a deeply personal one. The second... By Tatiana Corbitt2 min readBookmark for laterReactions 0 reactions Comments0 comments
What’s The Secret to Landing a Social Media Campaign?Through the Social Health Network, you’ll be able to learn a lot about branding yourself as a professional Health Leader. We want you to have endless opportunities to play your... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Living With Chronic Illness as a Black Woman: A Personal StoryI have been living with chronic illnesses for over 20 years. I was diagnosed with lupus and rheumatoid arthritis (RA) in the prime of my life. As a black woman... By Racquel H. Dozier3 min readBookmark for laterReactions 0 reactions Comments6 comments
Have You Ever Thought About Becoming a Patient Advocate?Twenty years ago, when I was first diagnosed with a lifelong illness, I would never have imagined what that diagnose would mean and how it would change my life. All... By Vickie Wilkerson3 min readBookmark for laterReactions 0 reactions Comments2 comments
Advocating Like a Journalist: Tips for Sharing Newsworthy ContentSo much of how we advocate involves storytelling and creating content that leaves a lasting impression. It can be overwhelming to know what topics to focus on, what information will... By Natalie Hayden3 min readBookmark for laterReactions 0 reactions Comments2 comments