In honor of World Rare Disease Day, the Patient Leader Network sat down with fellow rare disease patient leaders Jenica Leah, Meridith O’Connor, and Jessica…
A new year brings fresh avenues for advocacy: new collaboration opportunities, new initiatives to launch, and even new organizations to build. We're humbled and honored…
Living with a chronic illness not only means dealing with a lifetime of complications but it also means endlessly fighting off the stigma associated with…
