Resources

Recent Posts

Newly Released: The Healing Power of Storytelling

"When an illness forces you to reconsider your entire life, you inevitably have questions, and many of these questions can only be answered by people…

World Rare Disease Day Patient Panel

In honor of World Rare Disease Day, the Patient Leader Network sat down with fellow rare disease patient leaders Jenica Leah, Meridith O’Connor, and Jessica…

Eight Steps to Elevate Your Advocacy

A new year brings fresh avenues for advocacy: new collaboration opportunities, new initiatives to launch, and even new organizations to build. We're humbled and honored…

#WEGOHealthChat Twitter Chats

May #WEGOHealthChat Recap: Tackling Sensitive Issues in Advocacy

Advocacy is hard enough as it is, but how do you handle spreading awareness when you have a condition that makes people uncomfortable to talk…

April #WEGOHealthChat Recap: How to Pitch Your Patient Journey to the Press

As a Patient Leader, your number one focus is how you can raise awareness and help more people. One of the best ways to do…

March #WEGOHealthChat Recap: Combating the Stigma of Chronic Illness

Living with a chronic illness not only means dealing with a lifetime of complications but it also means endlessly fighting off the stigma associated with…

Podcasts

X
Send this to a friend