Category: Patient Leader Network


Rare Disease Day: Importance of Fundraising and Research

For some 30 million Americans living with a rare disease is part of everyday life. Many individuals suffering from a rare disease go to sleep and wake up with the same understanding and outlook of the disease as they did the day before, or even years before - there is no reprieve. In the United…

#WEGOHealthChat Recap: Balancing Self-Care and Advocacy

For the month of love, we focused on self-care and how to continue to put yourself first - even when it's tough! Our co-hosts, @RieOfLetters and @PCOSSUpportGirl, both massive supporters of self-care and self-care practices, shared incredibly useful suggestions and tips for putting yourself first and still being a great advocate. Looking for the best…

What conferences should Patient Leaders have on their radar this year?

With a new year ahead of us, we have the chance to start filling up our schedules with great healthcare-related conferences! We asked our Patient Leader Connection Facebook Group* what were the must-attend conferences for 2018. We were delighted to see interest in various conferences across all condition areas and topics. We've listed a few…

January #WEGOHealthChat Recap: Your 2018 Advocacy Goals

Goals! Everybody has them, but Patient Leaders seem to be some of the most goal-oriented people around. We're always so impressed with the goals our Patient Leaders set and achieve year after year. That's why we were so egar to ask our Network what they hoped to accomplish in 2018. We know these Leaders have…

Patient Leader #FollowFriday – January 19th, 2018

Happy Friday, Patient Leaders! This week, we've snagged an eclectic group for you to follow. From a women's health advocate living in Bangladesh, our favorite vegan living in Canada and a top-notch cancer advocate right here in the States, these three Patient Leaders will not only educate you, but they'll also help you make friends…

Menopause Patient Leader #FollowFriday – January 12th, 2018

Continuing with the women's health theme this month, we're featuring three remarkable menopause Patient Leaders. These women are removing the stigma surrounding menopause and working incredibly hard to empower women along the way. Not only have these three decide to share their own stories, but they've all made it their mission to support and educate…
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