Category: Patient Leader Network


Patient Leader #FollowFriday – March 23rd, 2018

Another #FollowFriday is here and we've got another three Patient Leaders to knock your socks off! The following three Patient Leaders were all finalists in the 2017 WEGO Health Awards and for good reason, they are making major moves in advocacy. This Friday take some time to read about these three, follow them on their…

March #WEGOHealthChat Recap: Combating the Stigma of Chronic Illness

Living with a chronic illness not only means dealing with a lifetime of complications but it also means endlessly fighting off the stigma associated with chronic illness. How do you combat the stigma of chronic illness? Is it through education and awareness? Is it your role as a Patient Leader to combat this stigma? What…

Treatment Scores: The Future of Medicine

We know what patients need, but it sadly seems like no one cares. While the whole world of business, physicians, and programmers have been busy competing to create electronic health records, we have been working on figuring out the science behind medical treatments, because that’s what we care about. What the patient needs to know…

Introducing PatientTrueTalk.com – A New Way to Help the Newly Diagnosed

I’d like you to imagine or remember that moment you are told you have cancer and the doctor informs you of your treatment options, whether surgery, radiation, chemotherapy, clinical trial or some combination thereof. Time is of the essence and you need to make a decision soon. Aside from the people in the room with…

Multiple Sclerosis Patient Leader #FollowFriday – March 19th, 2018

In honor of Multiple Sclerosis Awareness Month, we're introducing you to three fantastic MS Patient Leaders! Multiple sclerosis (MS) is an unpredictable, often disabling disease of the central nervous system that disrupts the flow of information within the brain, and between the brain and body. You can learn more about MS here, or by connecting…

How to use Facebook groups as a patient community

When my husband and I created our website Diabetes Strong in 2015, one of our greatest challenges was to find a way to communicate directly with our community – outside of just comments on individual blog posts and our newsletter. A review of the existing diabetes forums and message boards revealed that most of them…

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