Category: Patient Leader Network


50 Shades of Grey: Chronic Disease Style

Sharon Coyle-Saeed's monthly blog post is ready for your to read! Make sure you check back in with our blog in May for her next post! 50 Shades of Grey: Chronic Disease Style By Sharon Coyle-Saeed This week, I ventured into New York City for my preoperational testing in preparation for surgery which will take…

ICYMI: #HAChat Hosted by Marla Murasko

In honor of #WorldDownSyndromeDay on March 21st, WEGO Health had Marla Murasko, a very dedicated Down Syndrome Health Activist, host a second #HAChat in March! Keep reading to view the recap of the event below. Please note that our next #HAChat will be May 3rd, so make sure to check out our Twitter then. Thanks for supporting…

ICYMI: March #HAChat

[View the story "WEGO Health Monthly Twitter Chat: Endometriosis" on Storify]

Sharon Coyle-Saeed Discusses DABDA

Sharon Coyle-Saeed's March guest blog post is ready for you to read! Make sure to check back in April for her next post. Happy reading :)   As my social work internship for the coming year is working with hospice patients, I am re-reading the DABDA theory which Elisabeth Kubler-Ross coined. It is a processing…

#ePharma16 Self-attestation for #PatientsIncluded

Patients or caregivers with experience relevant to the conference’s central theme actively participate in the design and planning of the event, including the selection of themes, topics and speakers. - Casey Quinlan (@MightyCasey), Matthew Zachary (@StupidCancer + @MatthewZachary), Randi Oster (@HelpMe_Health), Julie Cerrone (@justagoodlife),  were part of co-creation team, representing the patient voice both in…

Learn More About Bladder Cancer

Diagnosis and Treatment Options for Bladder Cancer By Joyce Paul Bladder cancer affects a lot of us. I personally know at least a couple of people who have had the misfortune of developing this malady. When caught early, it is supposed to be highly treatable, but sadly, many people don’t discover that they have the…
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