Category: Patient Leader Network


#ePharma16 Self-attestation for #PatientsIncluded

Patients or caregivers with experience relevant to the conference’s central theme actively participate in the design and planning of the event, including the selection of themes, topics and speakers. - Casey Quinlan (@MightyCasey), Matthew Zachary (@StupidCancer + @MatthewZachary), Randi Oster (@HelpMe_Health), Julie Cerrone (@justagoodlife),  were part of co-creation team, representing the patient voice both in…

Learn More About Bladder Cancer

Diagnosis and Treatment Options for Bladder Cancer By Joyce Paul Bladder cancer affects a lot of us. I personally know at least a couple of people who have had the misfortune of developing this malady. When caught early, it is supposed to be highly treatable, but sadly, many people don’t discover that they have the…

Check Out a New Resource!

Interested in learning about a product for dietary management of IBS? Our sharing hub is full of information about IBgard, a medical food. There are testimonials from doctors who have seen it work as well as from patients who have experienced it. A printable coupon to try IBgard yourself is also available! Check it out…

ICYMI: February #HAChat

Hi everyone! February 2nd was our #HAChat ! It was a fantastic success. Shout out to our host Jen Thorson who lead an incredible discussion all about heart health. Below is a recap of the #HAChat so keep reading and remember to join in on our next #HAChat in March!     [View the story…

Parenting Consistently with an Inconsistent Disease

Hi everyone! Sharon Coyle-Saeed is back with her monthly blog post! Keep reading below, and look for her posts at the beginning of each month! Parenting Consistently with an Inconsistent Disease By Sharon Coyle-Saeed   Prior to my health taking a turn in 2011 with more bumps than a rollercoaster ride, I was a proud…

Thyroid Awareness Month: Learn More from Joyce Paul

Common Thyroid Disorders and Their Treatments By Joyce Paul   The thyroid and the hormones it produces play an important role in regulating the body’s metabolic rate and the formation of bones. Disorders of the thyroid can have drastic effects on a person’s health and physical appearance. In general, thyroid disorders may be grouped into…
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