Category: Patient Leader Network


Treatment Scores: The Future of Medicine

We know what patients need, but it sadly seems like no one cares. While the whole world of business, physicians, and programmers have been busy competing to create electronic health records, we have been working on figuring out the science behind medical treatments, because that’s what we care about. What the patient needs to know…

Introducing PatientTrueTalk.com – A New Way to Help the Newly Diagnosed

I’d like you to imagine or remember that moment you are told you have cancer and the doctor informs you of your treatment options, whether surgery, radiation, chemotherapy, clinical trial or some combination thereof. Time is of the essence and you need to make a decision soon. Aside from the people in the room with…

Multiple Sclerosis Patient Leader #FollowFriday – March 19th, 2018

In honor of Multiple Sclerosis Awareness Month, we're introducing you to three fantastic MS Patient Leaders! Multiple sclerosis (MS) is an unpredictable, often disabling disease of the central nervous system that disrupts the flow of information within the brain, and between the brain and body. You can learn more about MS here, or by connecting…

How to use Facebook groups as a patient community

When my husband and I created our website Diabetes Strong in 2015, one of our greatest challenges was to find a way to communicate directly with our community – outside of just comments on individual blog posts and our newsletter. A review of the existing diabetes forums and message boards revealed that most of them…

Patient Leader #FollowFriday – March 9th, 2018

Happy Friday, Patient Leaders!   Can you believe that it's almost time to start thinking about starting nominations for the 2018 WEGO Health Awards? It seems like it was just yesterday when we were announcing the finalists. To reminisce on some of those wonderful people, we're featuring three of last year's finalists to get you…

Eating Disorder Patient Leader #FollowFriday – March 2nd, 2018

Happy Friday, Patient Leaders! This past week the online health community celebrated National Eating Disorder Awareness Week.  This awareness campaign is meant to start a conversation, help raise awareness, bust myths, and provide help for those struggling with an eating disorder. Thousands of patients, supports, and advocates turned to social media this past week to celebrate…

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