Newly Released: The Healing Power of Storytelling

"When an illness forces you to reconsider your entire life, you inevitably have questions, and many of these questions can only be answered by people who have lived under the same conditions." Fortunately, the online health community offers patients and caregivers a place of support, education, and empowerment - people who get it. "It turns…

World Rare Disease Day Patient Panel

In honor of World Rare Disease Day, the Patient Leader Network sat down with fellow rare disease patient leaders Jenica Leah, Meridith O’Connor, and Jessica Hanson to discuss the importance of resiliency, managing your own care, story sharing, and raising awareness to support the rare disease community. [su_youtube url="https://youtu.be/pNpssoeq9sc" width="800" height="560"] Key Takeaways We had…

Eight Steps to Elevate Your Advocacy

A new year brings fresh avenues for advocacy: new collaboration opportunities, new initiatives to launch, and even new organizations to build. We're humbled and honored to be a part of the patient journey, and we can't wait to see what the community accomplishes this year. Along the way, we'll be here to support your goals,…

Year in Review: Reflection & Goal Setting for Patient Leaders

The countdown to 2022 is on, but before we head into the new year, let's pause to reflect on our advocacy this past year. After all, the only way to improve is to take all your victories and battles as valuable learning lessons. In this patient leader workshop, we’ll hear from top patient leaders and…

Navigating the Holidays While Living with Chronic Illness

As the cold sets in, darkness falls, and the busy holiday season commences, many people feel vulnerable. Those of us living with chronic conditions may feel especially so. Grief for what and who have been lost arises, commercialization overwhelms, and our physical bodies need more care than ever. How can we navigate this season as…

Be Heard: The Power of Social Audio For Advocacy

Have you heard of - or tried - Clubhouse, Facebook's Live Audio or Twitter Spaces? Do you know how to best use them to make the most of your time? Do you also know that they're a PERFECT fit for you specifically, as a member of the Patient Leader Network? In this patient leader webinar,…