Category: Patient Leader Network


Spinal Muscular Atrophy Patient Leader #FollowFriday – April 20th, 2018

On this #FollowFriday, we're featuring three really powerful Patient Leaders. Below you'll meet Alex, Ariella and Heather who are living with Spinal Muscular Atrophy. SMA is a genetic disease affecting the part of the nervous system that controls voluntary muscle movement. We encourage you to check out these Patient Leaders, learn more about SMA and help…

April #WEGOHealthChat Recap: How to Pitch Your Patient Journey to the Press

As a Patient Leader, your number one focus is how you can raise awareness and help more people. One of the best ways to do that is to get your story out in front of as many people as possible. But how do you do that? In the April #WEGOHealthChat, we spoke with @NatalieSparacio, a former…

Testicular Cancer Awareness: Tip for Self-Check

April is Testicular Cancer Awareness Month, and although we should be staying on top of our health year-round, it's a great time to spread the word about this disease. It's important to not only celebrate the survivors and also remember those who lost their bout with TC, but also spread awareness and educate those on…

For Health Communities, Facebook is Too Important to Delete

No one is happy about Facebook’s failure to protect our data, including its CEO, Mark Zuckerberg, who issued a mea culpa in newspaper ads over the weekend. “This was a breach of trust and I’m sorry we didn’t do more at the time,” Zuckerberg said. “We have a responsibility to protect your information. If we…

Patient Leader #FollowFriday – March 23rd, 2018

Another #FollowFriday is here and we've got another three Patient Leaders to knock your socks off! The following three Patient Leaders were all finalists in the 2017 WEGO Health Awards and for good reason, they are making major moves in advocacy. This Friday take some time to read about these three, follow them on their…

March #WEGOHealthChat Recap: Combating the Stigma of Chronic Illness

Living with a chronic illness not only means dealing with a lifetime of complications but it also means endlessly fighting off the stigma associated with chronic illness. How do you combat the stigma of chronic illness? Is it through education and awareness? Is it your role as a Patient Leader to combat this stigma? What…

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