Category: Patient Leader Guest Blog


How Patient Advocates can make the most of Awareness Holidays

Raising awareness about a disease or health concern can be an excellent means to foster an appreciation for patients and families, encourage donations to research, or even education about preventative measures. Awareness holidays offer major opportunities to get the word out about a specific disease or overall community. Patient advocates can take advantage of this…

Using My Patient Journey with Crohn’s Disease to Influence Healthcare

My Patient Journey As a woman who has battled Crohn’s disease for nearly 12 years and as a new mom, navigating my “new normal” is daunting. It’s a realm of new experiences, joys, and struggles. The worry of when the next flare-up will strike and how I’ll deal with it when I end up in…

How I Birthed a Breech Book: 8 Steps for Self-Publishing a Book

"Have you ever thought of writing a book?” That was the comment I kept hearing from medical and nursing students when sharing my story with them. After several years of hearing this, I decided to listen.  I'm glad I did. In between making the decision to write a book, and seeing it published, it was…

10 Tips for Being a Social Media Correspondent at a Conference

I attended the #HealtheVoices conference by Janssen in Chicago this past weekend as a social media correspondent for WEGO Health. I went into the event knowing that there was a lot going on so I did a few things to prepare and this set me up for an easy social media sharing frenzy over the…

The 411 on Planning an Online Event for your Cause

The only thing you need when planning a campaign to raise awareness for your cause is the desire to make change happen… Of course, there are many other components in planning any type of campaign, network or mission that aims to influence the public and media but, in order to do so, you must be…

Louise Glover: 2016 Best in Show Youtube Winner

My diagnosis of epilepsy was a shock. I didn’t understand how I could have such a condition and insisted that my doctors and neurologists were wrong. I’d only ever saw seizures on television and across social media of tonic-clonic seizures - was that really me? Having just turned 18, a life changing condition was not…
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