Category: Patient Leader Guest Blog
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Testicular Cancer Awareness: Tip for Self-Check
April is Testicular Cancer Awareness Month, and although we should be staying on top of our health year-round, it's a great time to spread the word about this disease. It's important to not only celebrate the survivors and also remember those who lost their bout with TC, but also spread awareness and educate those on…
Treatment Scores: The Future of Medicine
We know what patients need, but it sadly seems like no one cares. While the whole world of business, physicians, and programmers have been busy competing to create electronic health records, we have been working on figuring out the science behind medical treatments, because that’s what we care about. What the patient needs to know…
Introducing PatientTrueTalk.com – A New Way to Help the Newly Diagnosed
I’d like you to imagine or remember that moment you are told you have cancer and the doctor informs you of your treatment options, whether surgery, radiation, chemotherapy, clinical trial or some combination thereof. Time is of the essence and you need to make a decision soon. Aside from the people in the room with…
How to use Facebook groups as a patient community
When my husband and I created our website Diabetes Strong in 2015, one of our greatest challenges was to find a way to communicate directly with our community – outside of just comments on individual blog posts and our newsletter. A review of the existing diabetes forums and message boards revealed that most of them…