Category: Blog


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REPLAY: How to Advocate for a Terminal Condition Panel

We were joined by panelists Olivia Salvo, Sarita Edwards, and Abigail Johnston as they discussed the differences, challenges, and opportunities they encountered while advocating for a terminal diagnosis versus a chronic condition. If you weren’t able to watch the panel live, we recommend that you check out the replay for useful tips to advocate for…
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Getting to Know Our Social Health Network Members

The new Social Health Network (SHN) provides space to connect with other patient leaders. In August, we posted several prompts to the Social Health Network Facebook page to act as springboards for understanding one another and forming connections. Community members had many insights to share! How summer heat affects them One of the questions we…
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Let’s Look at Mental Health Myths + Facts

Mental health cannot be separated from physical health. According to the Centers for Disease Control and Prevention (CDC):1 "Mental health includes our emotional, psychological, and social well-being. It affects how we think, feel, and act. It also helps determine how we handle stress, relate to others, and make healthy choices." Patient advocacy is hard work!…
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Advice for Getting Started in Advocacy

The journey to begin advocacy can feel overwhelming. Many questions arise. How do I start? What do I say? Does anyone want to hear from me? We recently asked Social Health Network members to share their best first steps: “Let’s talk advocacy. For many, taking the first step to openly talk about what they’re going…

For Bob

Robert, always Bob, DeMarco passed away recently – and we have all lost a true patient leader, a tireless advocate, researcher, and supporter for Alzheimer's caregivers, a gifted author, and an inexhaustible speaker. [caption id="attachment_27822" align="alignright" width="300"] Spotted: Jack Barrette and Bob DeMarco (Alzheimer's Reading Room) catching up in Florida.[/caption] Bob never sought awards or…

Announcing the Inaugural Industry Honorees of the 10th Annual WEGO Health Awards

For 10 years, the nominees, finalists, and winners of the WEGO Health awards have brought to all who know them overwhelming inspiration and appreciation for making patient advocacy their mission. This year’s winners are no different and as incredible as ever. What set this year’s class apart from those prior is the addition of some…
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