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About: Seth Rotberg

Seth Rotberg
Seth is a patient advocate, community connector, and motivational speaker who is passionate about bringing his personal experience to support the health community. His passion is driven by his mother's 17-year battle with the rare, genetic disease known as Huntington's Disease (HD). At the age of 20, Seth also tested positive for the disease and is a gene carrier.

Seth has a master's in nonprofit management from DePaul and a former Patient Leader Recruiting Manager at legacy WEGO Health.

Posts by Seth Rotberg:

Your Patient Voice Deserves a Paycheck, Here's What To Charge

Your Patient Voice Deserves a Paycheck, and Here’s What to Charge

Time and time again, we hear the question, “How much should I charge for my patient advocacy expertise?” It’s an ongoing and worthy debate for patient leaders in the health space. But before we determine how much to charge for our services, we first need to understand the following: What type of service are you…

5 Creative Ways Lupus Patient Leaders Are Raising Awareness

Here are 5 lupus patient leaders channeling their artistic talents into advocacy: Living la vida lupus can be all-consuming — from doctor’s appointments and treatments, to unpredictable flares and complications related to this autoimmune disease. Despite the challenges of navigating a lupus diagnosis, there are patients who are using their creativity and health experiences to…
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