When it comes to patient advocacy, a huge part of the experience is telling your story. Whether you’re sharing it on social media, in an interview, to a fellow support group attendee, or with someone whom you just met on the street, there’s a lot of decisions you have to make!
What details should I share?
How can I condense this story?
How much medical information should I include?
Does this person even know what my condition is?
Patient Leader Jed Finley, who writes on AnkylosingSpondylitis.net and AxialSpondyloarthritis.net, has broken down some of the steps he took to create his “go to” story. As he states in the article: “You never know when someone is going to ask, so you should be prepared to share.” Read his advice on “Preparing to Share” here.
