Month: October 2022


a younger woman holds an umbrella over herself and an older woman who is fading away as it rains on them and a globe surrounds them

From Caregiver to Advocate: Tonya’s Story

November is National Caregiver Month. It's a month to celebrate the millions of people who care for their aging, disabled, chronically ill, or terminally ill friends and family members. This week, we are sharing a story from patient leader Tonya Hidalgo, a writer at COPD.net. She blogs at The COPD Life and is the author…
a man looks at a calendar with a lightning bolt of pain behind him as his shadow

Community Views: How Chronic Pain Affects Patient Leaders

Generally, pain that lasts longer than 3 to 6 months is considered chronic pain. It is pain that stretches beyond the expected timeline for typical healing. Chronic pain is common – more than 1 out of 10 people experience it. And it often accompanies chronic illness, adding another layer to the challenges that illness presents.1…
several mouths with speech bubbles show a sun, scribbled words, and a network of people

Getting to Know Our Social Health Network Members

The new Social Health Network (SHN) provides space to connect with other patient leaders. In August, we posted several prompts to the Social Health Network Facebook page to act as springboards for understanding one another and forming connections. Community members had many insights to share! How summer heat affects them One of the questions we…
a scan of a brain with thought bubbles showing an X and a checkmark and speech bubbles showing typing dots

Let’s Look at Mental Health Myths + Facts

Mental health is inextricably tied to physical health. According to the Centers for Disease Control, mental health "includes our emotional, psychological, and social well-being. It affects how we think, feel, and act. It also helps determine how we handle stress, relate to others, and make healthy choices." 1 Patient advocacy is hard work, and it…
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