Month: March 2022

Five Things Organizations Should Know About Patient Partnerships

When it comes to advocacy, patient leaders are essential and provide a unique perspective. Whether representing the needs of the community, contributing valuable insights, or inspiring new ideas, patient leaders’ impact is always transformative. At Health Union, we’re passionate about bridging the gap between industry and patient leaders, so that we can transform healthcare and…

Newly Released: The Healing Power of Storytelling

"When an illness forces you to reconsider your entire life, you inevitably have questions, and many of these questions can only be answered by people who have lived under the same conditions." Fortunately, the online health community offers patients and caregivers a place of support, education, and empowerment - people who get it. "It turns…

World Rare Disease Day Patient Panel

In honor of World Rare Disease Day, the Patient Leader Network sat down with fellow rare disease patient leaders Jenica Leah, Meridith O’Connor, and Jessica Hanson to discuss the importance of resiliency, managing your own care, story sharing, and raising awareness to support the rare disease community. [su_youtube url="https://youtu.be/pNpssoeq9sc" width="800" height="560"] Key Takeaways We had…