Year: 2022


a megaphone, a stethoscope, and a ribbon

Our Health Leaders’ Proudest Moments From 2022

The end of the year is often a time for reflection. Many moments make up those 365 days. We asked patient leaders to think about the last year. On the Social Health Network Facebook page, we asked, “In terms of advocacy, what are you most proud of this year?” Patient leaders made many strides in…
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Reshare: Why You Should Be Open With Your Crohn’s Diagnosis

Elizabeth Alvarez was diagnosed with Crohn’s Disease in 2011. She was 21 years old and endured many years of suffering...Elizabeth wants nothing more than to share her story, knowledge and special tips she has learned over the 7 years of living with Crohn’s. Her blog thedancingcrohnie.com shares amazing information and encouraging words to those dealing…
an arrow pointing from a notebook and pen to a hand on a laptop with a cup of coffee next to it

Reshare: Exploring Blogging as a Newly Diagnosed Patient

April Stearns was diagnosed at 35 years old with stage 3 breast cancer that she found while breastfeeding her daughter. Four years later, while struggling to “go back to normal” and find other women in similar circumstances, April launched Wildfire Magazine. Now she enjoys not only publishing the stories of those “too young for breast…
a group of content creators all linked like a network web

Meet Some of Our 2022 Content Creators!

In 2022, the Social Health Network partnered with several incredible patient leaders to create impactful social media campaigns. As part of this partnership, we want to highlight these amazing individuals' advocacy work. Tanya Freirich, Lupus Patient Leader Tanya combines her passion as a registered dietician nutritionist with advocating for lupus. Navigating her own lupus diagnosis,…
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Interview: Hope’s Idiopathic Condylar Resorption Journey

Recently we had the pleasure of interviewing Health Leader Hope Tocci, who wanted to share her experience living with Idiopathic Condylar Resorption. You can read her story below. How would you describe Idiopathic Condylar Resorption to others? I would describe ICR as a rare degenerative joint disease of the jaw/TMJ that is a progressive, debilitating…
a man with a wind up doll key in his back pushes his wife in a wheelchair as they look out of the window

How to Be an Empowered (and Empowering) Caregiver to A Stage IV Patient

We are continuing to celebrate Caregiver Awareness Month here at the Social Health Network by resharing some of our best community articles related to caregiving. At BladderCancer.net, Patient Leader Renata Louwers shares how to be the most empowered and empowering caregiver to someone living with stage IV cancer. She states: "Yes, it was rewarding and…
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