Year: 2022

a group of content creators all linked like a network web

Meet Some of Our 2022 Content Creators!

In 2022, the Social Health Network partnered with several incredible patient leaders to create impactful social media campaigns. As part of this partnership, we want to highlight these amazing individuals' advocacy work. Tanya Freirich, Lupus Patient Leader Tanya combines her passion as a registered dietician nutritionist with advocating for lupus. Navigating her own lupus diagnosis,…

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Interview: Hope’s Idiopathic Condylar Resorption Journey

Recently we had the pleasure of interviewing Health Leader Hope Tocci, who wanted to share her experience living with Idiopathic Condylar Resorption. You can read her story below. How would you describe Idiopathic Condylar Resorption to others? I would describe ICR as a rare degenerative joint disease of the jaw/TMJ that is a progressive, debilitating…

a man with a wind up doll key in his back pushes his wife in a wheelchair as they look out of the window

How to Be an Empowered (and Empowering) Caregiver to A Stage IV Patient

We are continuing to celebrate Caregiver Awareness Month here at the Social Health Network by resharing some of our best community articles related to caregiving. At BladderCancer.net, Patient Leader Renata Louwers shares how to be the most empowered and empowering caregiver to someone living with stage IV cancer. She states: "Yes, it was rewarding and…

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Prepare to Share: Learning How To Tell Your Story

When it comes to patient advocacy, a huge part of the experience is telling your story. Whether you're sharing it on social media, in an interview, to a fellow support group attendee, or with someone whom you just met on the street, there's a lot of decisions you have to make! What details should I…

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From Caregiver to Advocate: Tonya’s Story

November is National Caregiver Month. It's a month to celebrate the millions of people who care for their aging, disabled, chronically ill, or terminally ill friends and family members. This week, we are sharing a story from patient leader Tonya Hidalgo, a writer at COPD.net. She blogs at The COPD Life and is the author…

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Community Views: How Chronic Pain Affects Patient Leaders

Generally, pain that lasts longer than 3 to 6 months is considered chronic pain. It is pain that stretches beyond the expected timeline for typical healing. Chronic pain is common – more than 1 out of 10 people experience it. And it often accompanies chronic illness, adding another layer to the challenges that illness presents.1…