Year: 2021

Year in Review: Reflection & Goal Setting for Patient Leaders

The countdown to 2022 is on, but before we head into the new year, let's pause to reflect on our advocacy this past year. After all, the only way to improve is to take all your victories and battles as valuable learning lessons. In this patient leader workshop, we’ll hear from top patient leaders and…

Navigating the Holidays While Living with Chronic Illness

As the cold sets in, darkness falls, and the busy holiday season commences, many people feel vulnerable. Those of us living with chronic conditions may feel especially so. Grief for what and who have been lost arises, commercialization overwhelms, and our physical bodies need more care than ever. How can we navigate this season as…

Be Heard: The Power of Social Audio For Advocacy

Have you heard of - or tried - Clubhouse, Facebook's Live Audio or Twitter Spaces? Do you know how to best use them to make the most of your time? Do you also know that they're a PERFECT fit for you specifically, as a member of the Patient Leader Network? In this patient leader webinar,…

Five Times We Were Thankful For the Efforts of the Patient Leader Community

As the year comes to a close, and Thanksgiving approaches in the USA, we’re practicing gratitude and reflection. At the center of our gratitude is our dedicated, diverse, and driven Patient Leader Network members. Day in and day out, our patient leaders are the reason we wake up and fight for a more patient-centered system.…

Your Patient Voice Deserves a Paycheck, and Here’s What to Charge

Time and time again, we hear the question, “How much should I charge for my patient advocacy expertise?” It’s an ongoing and worthy debate for patient leaders in the health space. But before we determine how much to charge for our services, we first need to understand the following: What type of service are you…

10 Ways You Can Advocate for the Invisible Disabilities Community

To recognize Invisible Disabilities Week, we invited patient leaders of the invisible disabilities community to join forces to support, empower, and raise awareness for their communities. During this community chat, we discussed key topics and issues impacting patients with invisible disabilities such as self-advocacy, the workplace and disability, and overcoming the challenges of “invisible” symptoms.…