Month: June 2018

Gaucher’s Patient Leader #FollowFriday – June 29th, 2018

This week we're featuring three Patient Leaders in the Gaucher's Disease community. Never heard of Gaucher's? That's not surprising considering it affects between 1 in 50,000 and 1 in 100,000 people. Less than 1 percent of the population in the U.S. are carriers for type 1 Gaucher's disease, which is pronounced "go-shays." Considering how rare Gaucher's can be, we're…

IBD Patient Leader #FollowFriday – June 22nd, 2018

The Inflammatory Bowel Disease (IBD) community had a big showing in last year's WEGO Health Awards, in fact, there were quite a few Crohn's and ulcerative colitis patients that walked away winners! There are approximately 10 million people living with IBD worldwide, and we're here to showcase just a few today, showing you all the…

Digital Trends: Improving Senior Health Through Tech

With the growing focus on health holidays such as National Senior Health & Fitness Day- an observance day that’s been held on May 30 for the last 25 years encouraging seniors to take control of their health through regular physical activity- the spotlight is on digital technologies that are helping seniors learn and try new…

Postpartum Depression Patient Leader #FollowFriday – June 8th, 2018

It is estimated that the reported rate of clinical postpartum depression among women is between 10%-20% of all live births, which is a lot of moms and yet so many moms wait a significant amount of time to seek help, if ever. PPD is topic that we are starting to see more often in the news, but…

#PatientLeader Webinar: HealtheVoices18 Recap – Top Tips & Takeaways

HealtheVoices18 has come and gone - but the hype isn’t over yet! HealtheVoices is a conference focused on bringing together Patient Leaders who represent a wide variety of health conditions, experience levels, and backgrounds. The conference strives to bring a diverse group of attendees each year, fostering an environment of engaging and insightful conversations. Join…

Becoming the Hero of Your Own Story

Much of our personal happiness and sense of well being comes down to one simple thing: How we tell the story about ourselves to ourselves. Do you tell yourself, in your inner voice (“self-talk”), “You are brave and courageous, and have survived difficult times in your life?” Or does that voice yell at you about…