Month: May 2018


May #WEGOHealthChat Recap: Tackling Sensitive Issues in Advocacy

Advocacy is hard enough as it is, but how do you handle spreading awareness when you have a condition that makes people uncomfortable to talk about? How do you approach the sensitive topics? In the May #WEGOHealthChat, Jackie and Kristen from the WEGO Health team talked you through bridging the gap and sharing their own experiences…

Top Podcast Patient Leaders to Watch

What exactly is a podcast? Podcasting has been around for a while, but it really started to take off in the early 2000s. In the past few years, podcasting has seen an explosion in popularity. Well-known podcasts like Serial became a phenomenon that was talked about as frequently and as passionately as must-see television. Today,…

Heart Disease Patient Leader #FollowFriday – May 11th, 2018

We've got heart eyes for days for these four heart disease Patient Leaders! For this week's #FollowFriday, we're featuring four fantastic people who are advocating to keep hearts everywhere healthy and happy. Through sharing their experiences with unexpected heart disease, they're helping to educate and raise awareness to keep us all a little healthier!  Have a…

HealtheVoices 2018: Finding My Tribe

  Finding My Tribe In 2012, I wrote my first blog about my journey with inflammatory bowel disease (IBD). There was no rhyme or reason to my post, I was simply telling my story. Over the next few weeks, my journey in blogging about IBD evolved into advocacy. I had found purpose in sharing information…

Pharma Social Media Best Practices: Reaching Out Within Regulatory Restrictions

Not so long ago, pharmaceutical companies would shy away from social media. As a regulated industry, it wasn’t surprising that pharma might want to avoid the regulatory and reputation risks that come along with the open, generally unmoderated, exchanges on social media. But these days that’s changed. Pharma can be seen Facebooking and Tweeting along…

Patient Leader #FollowFriday – May 4th, 2018

Last weekend was the HealtheVoices conference and I had the pleasure of meeting over 100 Patient Leaders in 40 condition areas. Was it awesome? Yes. Was it overwhelming? Yes but so worth it. This #FollowFriday is a special one, not only because we are featuring 4 Patient Leaders, but they're all people I met at…
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