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Epilepsy Awareness Month and the #MyEpilepsyHero Campaign

That’s a wrap for November. So, what was WEGO Health up to the last 30 days?

WEGO Health was actively involved with a client’s #MyEpilepsyHero campaign. Starting on September 18th, 2017 and running through November 30th, 2017 WEGO Health partnered up to raise epilepsy awareness and money for the Epilepsy Foundation.

This campaign (which is still going strong through April 2018) was created to encourage the epilepsy community to share who their epilepsy hero is on social media and including the hashtag #MyEpilepsyHero in their post. Every time someone shared a hero, the client will donate $1 to the Epilepsy Foundation. The heroes you share can be individuals living with epilepsy, caregivers of patients living with epilepsy, doctors, service animals, providers – you name it.



To support this initiative, WEGO Health worked with the client to launch a promotional campaign to help raise awareness of #MyEpilepsyHero by getting people to share their heroes and use the hashtag. In total, we had 321 people share their hero, which means $321 will be donated to the Epilepsy Foundation!


In addition to helping raise money for the Epilepsy Foundation, this campaign provided an opportunity to give credit to the epilepsy heroes and warriors of the world. With 1 in 26 people having epilepsy in the U.S.1, raising awareness and discussing epilepsy is vital. We truly appreciate all who supported and continue to support this campaign.

Please note: There is still time to share who your hero is and raise money for the Epilepsy Foundation! Visit the My Epilepsy Hero group on Facebook and comment here.


If you’re looking for some great Patient Leaders who are talking about Epilepsy, allow us to recommend some of our friends!


Whitney Petit

Website | Facebook | Twitter | Instagram

Whitney did a WEGO Health webinar about how to live on your own with Epilepsy which you can see here! And don’t miss her video story of who her own epilepsy hero is here.



Epilepsy Dad

Website | Twitter | Facebook

Dave is the author and father behind Epilepsy Dad, a blog for parents of children living with epilepsy.  Dave uses his blog as an outlet but also as a way to connect, share stories and support other parents.


Kate Sondergeld

WebsiteTwitter | Instagram

Kate was diagnosed with left temporal lobe epilepsy with myoclonus and essential tremor.  She writes about her experiences – the good, the bad, the ugly and the funny. Kate was also nominated for three WEGO Health awards in 2017!


Tiffany Kairos

Website | Twitter | Facebook

Tiffany is an epilepsy Patient Leader as well as the founder of  The Epilepsy Network (TEN) Organization which is known throughout the world and has an online support network of over 21,000. She was the WEGO Health Award Winner for Best In Show: Twitter in 2016.


Megan Volkmer Davis

Website | Twitter | Facebook

Megan uses her blog to talk about her life as a patient, but also to share her experiences as a mom living with epilepsy. She’s a positive force in the world and definitely worth a follow.



If you’d like to have opportunities to share your story or host a webinar with WEGO Health, sign up for your WEGO Health account today!

*If you’re already a WEGO Health Account holder, be sure to take advantage of our closed Facebook group. This wonderful community is a great way to make connections across condition areas and to learn from other Patient Leaders.


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