Home/Company Info/Blog/Multiple Sclerosis Patient Leader #FollowFriday – December 8th

Multiple Sclerosis Patient Leader #FollowFriday – December 8th

We will be hosting Community Insight Groups with the Multiple Sclerosis community later this month and decided for this week’s #FollowFriday, we’d share some of the wonderful people we’ve met in this community — but with a twist!

Although studies say that women are twice as likely to develop MS than their male counterparts, we’re focusing on three of the top men making big moves in the MS community. 

 

Randy Patrick

Multiple Sclerosis Patient Leader

Facebook  |  Twitter  |  Website

“After being diagnosed with MS in November of 2012, I realized there are a lot of misconceptions about the disease. With all of the misconceptions and false information out there, it’s easy to see why people with MS can feel very alone. Many have heard of MS, but do not really know what it is. So I started the 3rd party group Must Stop MS to provide information to the MS community, provide support to those looking, and to bring people with MS together. Then by starting weekly Twitter/Facebook chats (#ChatMS), it helps people with MS make new connections and realize they are never alone when it comes to fighting this disease. We are able to share out experiences with each other who actually understand the disease. Knowledge and positivity are the 2 biggest assets you can have with fighting this disease, and bringing the MS community together helps provide these.

Randy is the 2017 WEGO Health Award winner for Best in Show: Twitter and it’s easy to see why! He created #ChatMS which is hosted every Monday at 7pm ET and tackles MS related topics every week.  #ChatMS has over 450,000 impressions and with a reach like that, you’re bound to find someone to add to your support network.

 

Dave Head

Multiple Sclerosis Patient Leader

Facebook  |  Twitter  |  Website

“As a 21-year-old person who experienced the life-changing experience of having over 5 feet of my colon removed due to Ulcerative Colitis and the resulting Ileostomy, I’ve felt an overwhelming sense to help others. At the time, there was not a lot of resource around me in my age group. I have always networked with people online and via text. Over the course of 10 years post Ostomy, I experienced a multitude of new health challenges. The diagnosis of Multiple Sclerosis in 2007, seizure activity (one confirmed Gran Mal) related to an MS therapy in 2012 to an incredibly rare skin disease by the name of Pyoderma Gangrenosum in 2013. With all of these experiences, I have always felt compelled to share my story and trials, not only for self-therapy, rather to help others to realize they are not alone. Through all of this, I found myself in situations helping others manage similar situations with themselves or ones they love. To better allow my story to reach more people I began to write a blog with at least one entry per week. This is not only an outlet for myself, rather a venue to which others can see they are not alone in what they or ones they care for may be experiencing. As a young father to two elementary aged children, who lives with MS, understandably I miss a week or two. I always am planning my next article pulling from current or past experiences I feel the need to share. Other times, simply speaking to the reality I and others like me live each day.  ”

 

Dave was a finalist in the 2017 WEGO Health Awards in the category of Rookie of the Year! We can’t wait to see what 2018 has in store for him.

Gustavo San Martin

Multiple Sclerosis Patient Leader

Facebook  |  Twitter  |  Website

“I was diagnosed with Multiple Sclerosis (MS) in 2011. The day I heard about the disease, my mother start researching about MS on Internet. The references she found were not positive! A few minutes later she came into my room, sobbing from crying, and asked: Son, are you going to die? From that day on I decided to work so that any other people would not come across the scenario that my mother found. Today, 4 years later, AME (the page I created to inform) is the largest association / platform of people with MS in Brazil.”

Gustavo is the winner of the 2017 WEGO Health Award for Best in Show: Facebook because the Facebook group he’s created for Brazilians living with MS is one of a kind! By sharing his story and his sincere passion for helping other patients, Gustavo has built a platform that supports thousands of patients daily.

 


If you’re feeling inspired by these top Patient Leaders, you should join our network!

When you join our Patient Leader Network you’re first to know about the new and exciting things we’re doing at WEGO Health. Not only will we reach out to you when we have paid opportunities in your condition area, but we’ll also connect you with other Patient Leaders so you can share ideas and help each other amplify your messages. What are you waiting for? Join today!

 

Did you miss last week’s #FollowFriday? You can catch up here!

X

Send this to friend