Month: April 2017

Feature Friday: Morgan Gleason, Rare Disease Patient Leader

Do you remember being eleven years old? Most of us can only recollect things related to braces, cooties and the playground. Morgan Gleason however, has a different story. Her family knew Morgan to be a normal kid- she spent time with friends, was active, and participated in cheerleading. Then one day Morgan began to notice…

Webinar: How To Be An Empowered Advocate

You were just told that you or a loved one has a health condition or a disability - now what do you do? Once you get over the denial phase of the diagnosis, only then can you start advocating. Only then can you begin to look for the best healthcare providers, to provide the best…

#WEGOHealthAwards Winners Series Podcast: Ronny Allan

Internationally known Neuroendocrine Cancer Patient Leader, Ronny Allan, is certainly making his mark in the online health community. Diagnosed with incurable Metastatic Neuroendocrine Cancer in July 2010, Ronny decided to share his experiences with this unusual, complex disease through blogging. This hobby quickly became a passion as Ronny became determined to move Neuroendocrine Cancer into mainstream…

#WEGOHealthChat Recap: How to Stay Positive on Your Patient Journey

In case you missed our April #WEGOHealthChat, we've got this awesome recap for you! In this Twitter chat hosted by Suzanne Stewart (@RaseforCRPS), a passionate chronic pain patient leader, we discuss how to stay positive and hopeful on your patient journey. We received so many tips and suggestions from our community! This is a great…

10 Tips for Participating in a Twitter Chat

Each month we host a twitter chat called #WEGOHealthChat. #WEGOHealthChat is a twitter meet up of the WEGO Health Patient Leader Network minds, discussing topics ranging from advocacy goals to becoming a paid consultant to challenges in building communities and everything in between. Many times we get asked “How do I participate in a #WEGOHealthChat?” or “I’ve never…

The 411 on Planning an Online Event for your Cause

The only thing you need when planning a campaign to raise awareness for your cause is the desire to make change happen… Of course, there are many other components in planning any type of campaign, network or mission that aims to influence the public and media but, in order to do so, you must be…