Month: March 2017

Louise Glover: 2016 Best in Show Youtube Winner

My diagnosis of epilepsy was a shock. I didn’t understand how I could have such a condition and insisted that my doctors and neurologists were wrong. I’d only ever saw seizures on television and across social media of tonic-clonic seizures - was that really me? Having just turned 18, a life changing condition was not…

Barby Ingle Shares Her #1 Advice for Award Winning Advocacy Efforts

Barby is the winner of the 2016 Lifetime Achievement award. She is a patient leader, motivational speaker, author, and President of the International Pain Foundation. Learn why she does it and her greatest advice for other patients. I advocate for all of us challenged with a chronic care condition involving chronic pain as well…

Do You Possess This Patient Leader Quality?

I had the chance to meet two representatives from the FDA’s Office of Health and Constituent Affairs during a patient advocacy workshop hosted by the National Center for Health Research, funded by PCORI (Patient-Centered Outcomes Research Institute). The Office of Health and Constituent Affairs involves patients in a myriad of ways through patient engagement milestones, programs,…

#WEGOHealthAwards Award Winner Series Podcast: Lisa Cypers Kamen

Lisa Cypers Kamen is an internationally recognized applied positive psychology coach, author, speaker, documentary filmmaker, and host of the popular radio show Harvesting Happiness, where she has helped millions of people around the world generate more joy and fulfillment in their life The 2016 WEGO Health Awards Best Kept Secret reminds listeners that control of your…

#WEGOHeathAwards Winners Series Podcast: Tiffany Kairos

2016 WEGO Health Awards winner, Tiffany Kairos, says her best advice for all patient leaders is to be authentically YOU - but to also utilize #hashtags! As the winner of Best in Show: Twitter, this patient leader 's twitter feed is one you won't want to miss. As an epilepsy fighter, she is passionate about epilepsy…