The last few months have been busy, busy, busy in the patient advocacy world! Conferences, summits, meetings, twitter chats, blog weeks, #HAWMC, awareness campaigns – you name it, it probably happened. Here at WEGO Health, we love getting involved with these activities.
Here at WEGO Health, we love getting involved with these activities.
Jack Barrette, David Goldsmith and Andrew Hopper had the privilege of connecting with patient leaders at Health 2.0. Want to watch the video? Check it out here.
Laurel Netolicky represented the patient voice by presenting findings to a telemedicine survey (that many of you took!) at the American Telemedicine Association Conference. Thanks Nathaniel for snapping a picture of Laurel on stage!
Kristen Hartman Bennett and I met up with Multiple Sclerosis patient leaders at a summit hosted by one of our sponsors in Boston, MA. We had a blast spending time with these leaders.
Caitlyn D’Agati worked with Epilepsy patient leaders to record patient testimonial videos for one of our sponsors. Watch them on our sharing hub.
Jack presented a panel with 3 top leaders at the ScriptMed conference in Miami, FL. In fact, the conference organizer said it was the best panel the conference has ever had!
And I had the opportunity to meet up with many patient leaders between Stanford Medicine X in Palo Alto, CA and NYC, at a patient advocacy training sponsored by National Center For Health Research in DC and at the American College of Rheumatology annual meeting.
A huge THANK YOU to all the leaders who have been working with Jackie Zimmerman on recruiting efforts. Truvios, conferences, community insight groups – there have been many different opportunities she’s been recruiting. Epilepsy, Bi-Polar Depression, Acromegaly, Multiple Sclerosis, Rheumatoid Arthritis, Hemophilia A & B, and Liver and Kidney Transplants are just a few of the condition areas we’ve worked with since August.
But, the last few months, a HUGE focus of ours has been on the WEGO Health Health Activists Awards. October brought the wrap up of our endorsements phase and Kristen Long and I began meeting with our judges. On each of our judging calls, Kristen and I reiterated what a tough job they had. Each and every nomination that came in had both of us saying “wow”. It truly is amazing what our community members are doing.
As we wrap up 2016, we’ll be calling on Patient leaders in the Atopic Dermatitis, Psoriatic Disease, Chronic Myeloid Leukemia, Duchenne Muscular Dystrophy, Gout and a few other condition areas as well. Want to get involved with these projects? Make sure to reach out to us: community (at) wegohealth.com.
But if you only take one thing from this newsletter, let it be this: sign up to support our Thunderclap campaign and come out to celebrate the patient voice December 5-9th, 2016. Make sure to learn more about the schedule of events here. Mark your calendars and don’t miss out!
Remember to keep us up to date on your adventures – we’d love to support you in any way that we can.
It’s been a wonderful 2016 in the great, wide world of patient advocacy. I can’t wait to see what 2017 brings!
Julie Cerrone is the Patient Influencer Network Director at WEGO Health. Working with WEGO Health as a Patient Influencer prior to joining the WEGO Health team, Julie wakes up every day motivated to help raise the patient voice. Follow Julie on Twitter, Facebook and on her personal blog.