Project Scleroderma is a 501(c)3 non profit organization with the primary purpose to dramatically increase the global level of awareness for a rare auto immune disease, scleroderma. After writing, filming and producing a feature length documentary film about the disease, our organization debuted “Project Scleroderma: Beneath The Surface” in 2015.
Now, in 2016, we are moving forward by producing a second wave of patient stories to be shared via social media. With this approach we are working to spark a ripple effect of awareness all around the globe with as many views and shares of these videos as possible.
Our most recent project is a documentary web series, titled “Dear Scleroderma”, which will highlight the stories of several young women who are working to raise awareness for scleroderma while simultaneously battling this awful disease. The first episode of the series features a young woman named Jessica Massengale and her social media community, “Scleroderma Strong”. Jessica is an amazing young woman, who inspires her entire community of scleroderma followers on a daily basis with her hopeful and empowering quotes, videos and insights into the disease she herself battles as well.
This episode is just the first of several episodes to be released in 2016, each with its own powerful message of hope and inspiration in the face of adversity. Our intention is to continue to educate the world about this disease, and to shed light on not only the physical toll this disease can take, but the emotional burden as well. We hope to spark compassion and understanding in our communities for the patients who suffer from this disease and to let scleroderma patients everywhere know that they are not alone.
We are working to rally a large collaborative effort to share our web series as far and wide as possible in our continued efforts to increase the global level of scleroderma awareness.
Make sure to watch this first episode:
Please join us in sharing this empowering, inspirational and educational series, and stay tuned for more to come from Project Scleroderma!
Christy McCaffrey is the Executive Director of Project Scleroderma. Project Scleroderma is a 501c3 Non Profit organization with a primary mission to dramatically increase the global level of awareness for a rare auto immune disease, scleroderma. Christy lost her mother in 2009 to this disease and was thus inspired to help create awareness. In collaboration with New Pace Productions, Project Scleroderma released a full length documentary in 2015, followed by a documentary web series in 2016.