#ePharma16 Self-attestation for #PatientsIncluded

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  1. Patients or caregivers with experience relevant to the conference’s central theme actively participate in the design and planning of the event, including the selection of themes, topics and speakers.

– Casey Quinlan (@MightyCasey), Matthew Zachary (@StupidCancer + @MatthewZachary), Randi Oster (@HelpMe_Health), Julie Cerrone (@justagoodlife),  were part of co-creation team, representing the patient voice both in development and on the platform.

  1. Patients or caregivers with experience of the issues addressed by the event participate[3] in its delivery, and appear in its physical audience.

Julie Cerrone (@justagoodlife), Tiffany Marie (@TiffanyandLupus), Cindy Chmielewski (@MyelomaTeacher), AnneMarie Ciccarella (@ChemoBrainfog), MarlaJan DeFusco (@MarlaJan), Dee Sparacio (@WomenofTeal), Alicia Staley (@Stales), Casey Quinlan (@MightyCasey), Todd Bello (@bello_todd), Shakir Cannon (@bl00db0rn) – all in audience, many on platform.

  1. Travel and accommodation expenses for patients or carers participating in the advertised programme are paid in full, in advance. Scholarships[4] are provided by the conference organisers to allow patients or carers affected by the relevant issues to attend as delegates.

Scholarships awarded to: AnneMarie Ciccarella Cindy Chmielewski Shakir Cannon Tiffany Peterson Todd Bello MarlaJan DeFusco

  1. The disability requirements of participants are accommodated[5]. All applicable sessions, breakouts, ancillary meetings, and other programme elements are open to patient delegates.

Conference venue, and conference, fully ADA compliant; rest areas easily accessible; dietary options offered for those with food/immune sensitivities.

  1. Access for virtual participants is facilitated,[6] with free streaming video provided online wherever possible.

Conference live-tweeted by all mentioned above; sessions Periscoped by MarlaJan DeFusco (compensated in addition to scholarship as onsite e-patient journalist)

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