Year: 2015

Health Activist Spotlight: Katie

  Katie is a Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome Health Activist. Katie blogs about her journey as a Health Activist and patient, and keeps readers updated on the happenings of her life. You can learn more about Katie by visiting her blog and connecting with her on Facebook and Twitter.  

Health Activist Weekly Roundup

  Moving Mobile Help Past The Hype "We need personalized, compelling and imaginative content that makes the user want to engage in self-care. People aren't moved to action by “data dumps,” but by emotion and narrative" The Panic Attack that Changed My Life Were you misdiagnosed? What hurdles did you face to get the proper…

Cliche Phrases and Why We Should Stop Saying Them

  When you have a chronic illness or disability, chances are you've heard the same motivational saying from well-wishers over-and-over again. Sure, your supporters mean well, but sometimes, certain cliches don't carry much weight.  In last year's Huffington Post article, Spinal Cord Injury Health Activist, Rachelle, speaks about 6 common phrases that she won't use and…

Self-Care Health Activist Twitter Chat

[View the story "Self-care Health Activist Twitter Chat" on Storify]

Health Activist Spotlight: Anna

    Myalgic Encephalomyelitis Health Activist, Anna, was diagnosed with Myalgic Encephalomyelitis, also known as Chronic Fatigue Syndrome, in November of 2010. Since 2012, she had dedicated her blog, M.E. Myself and I, to help her loved ones understand her journey with CFS. You can connect with Anna on her Facebook and Twitter accounts.  

The Pain of Invisibility

"Trying to explain what you are going through to someone who does not truly understand life with an invisible illness can feel like a daunting task. And, at least in my experience, my efforts are often unsuccessful. This invisibility and lack of understanding can make people with RA feel very isolated." How do you explain…
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