Sarah Coglianese was diagnosed with Amyotrophic Lateral Sclerosis (ALS) at the age of 33. A neurological disease resulting in paralysis, ALS has no cure or viable treatments, and the average life expectancy is 2-5 years from diagnosis. Now 36, Sarah balances her work as an ALS activist with her work as the mom of an…
Shakir, a Sickle Cell Disease Health Activist, spoke with last week's #hachat participants about the benefits and drawbacks of technology taking a larger role in your patient journey. Check out the full conversation below! [View the story "Technology Health Activist Twitter Chat" on Storify]
WEGO Health is hosting this week's Health Activist Twitter chat on Thursday, February 19th, (rather than February 17th,) at 2pm EST. Joining us as hosts is Global Genes, one of the leading rare disease patient advocacy groups in the world. During the one hour chat, we will be testing your knowledge of rare disease facts, talking…
Today we’re highlighting one of this year’s Health Activist Awards partners, Jessica of Uncover Ostomy. Jessica celebrates 12 years with her ostomy and gives 12 reasons why you should love yours! “It’s not because I believe that I am me because of my ostomy, but I believe that I am me because of what my ostomy has…
Going Red in 2015 February 6th was National Wear Red Day, and February is American Heart Month. Jen, who blogs at My Life In Red, shared 9 tips on "How to Go Red in 2015". Educate yourself and others on heart health & share this with family, friends, and other community members #americanheartmonth #gored Medical App that…
