IBD Health Activist, Brian, points out a common discussion among many patients and caregivers – how their illness affects their day-to-day life.
In June, Brian reflected on how IBD affects his daily life while sitting in New York City’s Central Park. He stated that while there are moments when IBD patients – and all chronic illness patients for that matter – have “normal” days, many non-patients don’t understand the behind-the-scenes planning that is necessary in order to make this happen.
Brian goes on to describe his preparation for that afternoon to his readers. Would he be able to bring his dog out with him? Where would he put his dog if he needed a public restroom? Would the walk to Central Park cause him too much pain?
I’ve worked a lot over the years to not let all these regular complications and worries get me down, but sometimes I slip and fall. Occasionally, like in this moment, I fear that I’m missing out on certain aspects of life.
Brian discusses that every now-and-then, he wishes he didn’t have to worry about going to the bathroom so frequently but notes that through Intense Intestines Foundation, he has been able to make a difference in the lives of others.
Health Activists, what is your normal? How does your chronic illness affect your daily activities? Does your planning look similar to Brian’s? What do you wish non-patients understood about planning your days? Sound off below!