Guest Post: What Inspires Me? It's Simple. My Son.

Today we have a guest post from Marla Murasko, a Health Activist in the Special Needs community who advocates for her son Jacob and helps empower fellow mom advocates in the Special and Determined space. Thanks so much for sharing your inspiration with us, Marla!

 

What Inspires Me? It’s Simple. My Son.

by Marla Murasko

 

This month is ‘Health Activist Inspiration Month’. The purpose of this month is to celebrate what drives health activists to empower themselves and others, and share the inspiration behind what makes us do the important work we do.  As a health activist I was asked to share what inspires me?


Quite simply it’s my son.  He empowers me to do what I do.  My goal is to share his life with others and bring awareness to the beauty of Down Syndrome.  See my son was diagnosed with Down Syndrome at birth – he is my inspiration and my greatest gift. Let me share why.

 

When I got married to my husband, I had one big dream and that was to have a family.  See I come from a large family and what I learned over the years is that family is one of the most important things one can have besides health and happiness.  Your family is truly the people you can go to for support, love and advice.

 

However, our journey in starting a family didn’t start off the way I had hoped.  We had issues and went to a infertility specialist for help.  But after a long year of painful shots, blood draws, surgeries and false hopes I needed a break.  Mentally, physically and emotionally I was exhausted.

 

I realized that if God wanted us to have children he would bless us with them.  I knew there was a plan for us, we were going to be parents, I just didn’t know when that would be.  So we stopped the intervention and about a month later we were pregnant.  I finally was going to have a baby.  See I knew there was a plan.

 

But then we found out that our son was born with a congenital heart defect and the likelihood of him being diagnosed with Down Syndrome was very high.  So again our faith was being tested.  This wasn’t the “plan” that my husband and I had in mind.  A child with special needs, would we be able to handle this.

 

Let me share with you a poem I came across:

HEAVEN’S VERY SPECIAL CHILD

A meeting was held quite far from Earth.
It was time again for another birth.

Said the Angels to the Lord above –
“This special child will need much love.

His progress may be very slow,
Accomplishments he may not show.

And he’ll require extra care,
From the folks he meets down there.

He may not run or laugh or play,
His thoughts may seem quite far away.

So many times he will be labeled different,
helpless and disabled.

So, let’s be careful where he’s sent,
We want his life to be content.

Please Lord find the parents who,
Will do a special job for you.

They will not realize right away,
The leading role they are asked to play.

But with this child sent from above,
Comes stronger faith, and richer love.

And soon they’ll know the privilege given,
In caring for their gift from heaven.

Their precious charge, so meek and mild
Is heaven’s very special child.”

 

And as it states above “with this child sent from above, comes stronger faith, and richer love” and this is what Jacob has given us.

 

See when he was first born, he was a very fragile and sick baby.  I looked down at my precious baby in a hospital bed with tubes sticking out of him, medicine being pumped in him making him sleepy and alarms digging all the time.  Again I questioned my faith and didn’t understand “the plan” God has bestowed on us.

 

As we stayed by his bedside every day we started seeing him get stronger, the tubes were disappearing, the alarms stopped ringing and it was finally time to take him home.

 

What a wonderful day it was to finally be able to bring my son home.  To hold him, the way a mom should hold their child without having to worry about tubes falling out and alarms ringing.

 

I sat holding his precious hand in mine,  (this is really our hands a photographer took it) looking at his beautiful face for hours, I realized very quickly “the plan” and was so thankful to God for choosing us to be his parents.

 

Jacob and I still hold hands, he’s six and half now, but it’s his hand holding mine, guiding me on this beautiful journey with him.

 

Thank you baby for coming into mommy and daddy’s life.  You fill our hearts everyday with love and we are so proud of you!

 

 

Share via
X
Send this to a friend