Many of our health communities focus on the topic of chronic pain. And no matter what your condition specifically is, if your community members experience chronic pain and all of the challenges that come along with being in pain – it’s a uniquely taxing and integral topic that Health Activists must tackle. When your community begins to get into the depths of pain discussions – how do you pull them out and lift them up while still addressing the importance and relevancy of that pain? It’s not easy. Furthermore, as a Health Activist in pain, how do you find the energy to keep blogging, answering others’ questions, tweeting, or learning when that pain is physically occupying your body and your mind?
Finding My Tribe In 2012, I wrote my first blog about my journey with inflammatory bowel disease (IBD). There was no rhyme or reason to my post, I was
For some 30 million Americans living with a rare disease is part of everyday life. Many individuals suffering from a rare disease go to sleep and wake up with t
Get your orange ready! The fourth-annual Color The World Orange on November 6 is almost here. Color The World Orange is an annual event held the first Monday