Health Activist Meetup – What would you like to discuss?

Our first ever Health Activist Meetup (held in Boston in April) was such a success that we’ve decided to hold another! If you’ll be in the area on June 24th, we’d love to have you join us for some great Health Activist conversation and networking. RSVP now to secure your spot before the event fills up: Boston Health Activist Meetup.

We’d also love your help in picking some Health Activist Topics for our Meetup! Last time, we focused on the path of Health Activism:

– The Road to Activism: How to Transform Your Passion into Activism
– Expanding Your Reach: How to Attract More Readers or Followers
– How to Connect Offline and Online Activism

Our Health Activist attendees had great ideas on all of these topics and helped our speakers to develop key takeaways for the group. This time, we’d like to make those takeaways available to all of you – especially those of you who won’t be able to join us !

Whether you can make it or not, be sure to leave a comment on this blog post with what you’d like to see covered during the Meetup. Are there Health Activist tools you’re interested in learning more about? Are there topics that you think are important to Health Activists across all communities? What resources could help you as a Health Activist? Let us know and we’ll make sure to include if in our list of possible session topics!

Hope to see you there!

4 thoughts on “Health Activist Meetup – What would you like to discuss?

  1. TheMatrix777 says:

    I have been involved in raising awareness for years; ever since getting diagnosed with RSD/CRPS in 2005. I live on SSDI and all my activities are limited due to financial resources.

    I do a weekly radio show called "Living With RSD" where I interview doctors, therapists, advocates and patients.

    I think your conferences are a great idea and would love to meet people with similar interests. But how are people with disabilities suposed to come up with the money to attend these functions?

    The very people you are trying to bring together are the same people with limited resources. You need to have some type of fund raising, event or financial assistance so that disabled advocates can attend these events. People want to get involved, but putting together these events where the costs involved for travel, lodging, etc make it impossible.

    I live in the west and have never seen an event scheduled for this area. Who chooses the locations and what is the criteria for having one in my area?

  2. I'd like to discuss ways that Health Activists can get people to work together across different health conditions. Like ways we can find the common ground then really use it to raise awareness/inspire activism for both (or more) causes?

  3. DItto to Amanda's comments. I'd love to be able to talk about social media strategies for activism and perhaps strategies for creating focused, specific goals as they relate to both online and offline activism.

  4. Yes, to what Amanda said. 20 years ago pregnancy was NOT recommended for women with MS. I had 2 kids anyway so I could have my ova destroyed with cytoxin – immediate menopause ensued at age 36. But when I started, with daughter #1, I had my own mini support group of woman with diverse disabilities who had small children. Now, my kids feel out-of-it, I'm lonely (in the suburbs) and dis-connected from other women, period.

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