Spotlight: Phyllis Zachery-Thomas (you may know her as przthomas)Website: AGASCA & SCD SoldiersTwitter: @przthomasOccupation: Retired accountantHobbies? BloggingHow did you get started in the Sickle Cell Disease Community online?After starting my own personal facebook page, I decided to start a page for the Advocacy Group for Adults with Sickle Cell Anemia (AGASCA). I created AGASCA as…
We are holding online focus groups on Thursday, January 21st for people who are active contributors to online Sickle Cell Disease communities. These groups are being held on behalf of one of WEGO Health's Sponsors.Focus groups will be held at 12 Noon Eastern Time, 4pm ET, 6pm ET and 9pm ET on Thursday, January 21stPlease…
We’re very excited to be introducing a new feature to our community today: the Featured Community Content Widget.We’ve been working hard here at WEGO Health to create a series of widgets that feature high quality content created by Health Activists. Each widget focuses on a single topic and highlights user-generated content: summaries and direct links…
Last week, WEGO Health had the chance to present the findings of the Health Activists and Social Media survey to the FDA hearings on health care companies use of the Internet and social media tools.After presenting on the first day, WEGO Health CEO Jack Barrette was interviewed by Russ Ward of Pixels and Pipes, a…
Today and tomorrow, the FDA is holding hearings on Health Care Companies' use of the Internet and social media tools. They are hearing from industry, consumer and goverment representatives, each given ten minutes to present their findings.WEGO Health's Jack Barrette, Bob Brooks, and Marie Connelly was chosen to present the results of our Health Activists…
Next week, the Food and Drug Administration (FDA) plans to hold hearings on Health Care Companies’ use of the Internet and social media tools. We at WEGO Health decided to bring the voice of our Health Activist community to this historic event. The result is a survey of over 160 Health Activists, their opinions, and some…
