Month: November 2008


The Higher Calling Of Social Media, #3: Engage With Grace

Engage With Grace is an amazing project I learned about and yes, cried about at the Health 2.0 meeting in San Francisco. Alexandra Drane, who launched this campaign to spur discussion of end-of-life wishes after her sister-in-law Rosaria Vandenberg died at 32, gave me the sudden, unexpected gift of another deeply emotional Reason We All…

Two womens’ health sites I’m totally digging

Stirrup Queens is a fabulous resource for those dealing with infertility and pregnancy loss. Melissa, the writer, holds a weekly Q&A on Tuesdays called Barron Advice and she has a great site map. She covers everything from diagnosis, to surgery to meds - make sure to check it out.The Well-Timed Period is devoted to contraception…

Boston Globe On Health Social Media

Today's Boston Globe joined the long line of media outlets to feature the patientslikeme web site and community. Founders the Heywood brothers and their team in Cambridge deserve the attention; their goal of harnessing patients' self-reported experiences to accelerate clinical research is game-changing. Check out the full story, "Through website, patients creating own drug studies"…

Alzheimer’s Disease Advisory Board Update

We had a great session on Wednesday night with some of the Health Activists in the Alzheimer's disease community. We talked a lot about what new features WEGO Health should be focusing on to better support the caregiver community. Participants want us to bring together caregivers, patients, doctors, folks who run facilities (both hospitals and…

Some Alzheimer’s disease research and inspiration

I'm getting ready for the Alzheimer's disease community advisory board session we're having tomorrow night and I've been doing some research on the Alzheimer's disease blogging community. There are many great writers out there.YOY at Alzheimer's Moments documents his journey caring for his mom. Check out this conversation.Krista at Alzheimer's Team cares for her dad…
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